e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
A “METRIC” of Progress for Participatory Medicine. Join us at #SPM2018
A recent medical society article demonstrates that participatory medicine advocates have made progress. The central point of the article is that the current approach to metrics distracts from the need to focus on the patient. As the authors phrase it: “There are...
#SPM2018 speaker Kristina Sheridan: Leveraging the data of patients’ stories
Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....
#SPM2018 speaker @RasuShrestha: “Let’s move from paternalism to where the patient is a true participant”
Here’s the latest in a series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here. Healthcare...
The next evolutionary step for SPM: a manifesto
Here’s the latest in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. And see this blog’s #SPM2018 series for more about, or by, the speakers and...
#SPM2018 speaker @MightyCasey gets piped in at Cochrane in Edinburgh
For updates, follow Casey's tweets on the #CochraneForAll hashtag - tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog - "Thoughts and provocations on the dramatic changes in...
@PsychCentral Show’s Gabe Howard to co-host live podcast episode at #SPM2018
Here’s the latest in a series of interviews with outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston. Register here. Embracing participatory medicine has helped Gabe Howard @GabeHoward29 manage...
Burt Rosen on the #SPM2018 conference: “Fix this f$%(*$&’ing mess we call health care!”
I joined the board of the Society for Participatory Medicine (sorry, I have to shorten it to SPM) about one year ago. I joined because I honestly think health care is f$#%#'ed up and I want to make a difference. We all agree about the problems, but my views on the...
#SPM2018 speaker Doug Lindsay: Driven by experience to advocate passionately for participatory medicine
SPM member Doug Lindsay developed the surgery that fixed him after he fell gravely ill to a rare autonomic-adrenal disease at the age of 21. First in a series of interviews with outstanding speakers at #SPM2018 Oct. 17 in Boston.
Lead article in influential journal proposes weaving participatory medicine into clinician education
Significant sign of cultural progress: new peer-reviewed article proposes introducing patient engagement into the competencies by which new physicians are measured and certified.
THCB picks up post by Josh Rubin – “We The Patients” is a winner!
From SPM Lifetime Member Josh Rubin: Fellow S4PMers, I am elated to report that on Monday, August 20, 2018, The Health Care Blog (THCB) re-posted my S4PM guest blog post titled, "Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the 'Last...
What Healthcare Can Learn from Mr. Rogers
Three insights our member Nancy Michaels gleaned from watching the movie “Won’t You Be My Neighbor” that clearly connect to medicine and the relationship between a medical team and patient or caregiver.
Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”
Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...