e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Burt Rosen on the #SPM2018 conference: “Fix this f$%(*$&’ing mess we call health care!”
I joined the board of the Society for Participatory Medicine (sorry, I have to shorten it to SPM) about one year ago. I joined because I honestly think health care is f$#%#'ed up and I want to make a difference. We all agree about the problems, but my views on the...
#SPM2018 speaker Doug Lindsay: Driven by experience to advocate passionately for participatory medicine
SPM member Doug Lindsay developed the surgery that fixed him after he fell gravely ill to a rare autonomic-adrenal disease at the age of 21. First in a series of interviews with outstanding speakers at #SPM2018 Oct. 17 in Boston.
Lead article in influential journal proposes weaving participatory medicine into clinician education
Significant sign of cultural progress: new peer-reviewed article proposes introducing patient engagement into the competencies by which new physicians are measured and certified.
THCB picks up post by Josh Rubin – “We The Patients” is a winner!
From SPM Lifetime Member Josh Rubin: Fellow S4PMers, I am elated to report that on Monday, August 20, 2018, The Health Care Blog (THCB) re-posted my S4PM guest blog post titled, "Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the 'Last...
What Healthcare Can Learn from Mr. Rogers
Three insights our member Nancy Michaels gleaned from watching the movie “Won’t You Be My Neighbor” that clearly connect to medicine and the relationship between a medical team and patient or caregiver.
Biomedical Knowledge Must Be Mobilized to Save Lives, Not Privatized in the “Last Mile”
Guest post by SPM Lifetime Member Joshua C. Rubin, JD, MBA, MPH, MPP Last week, Facebook’s unprecedented stock price collapse triggered by concerns over personal data privacy, as well as same-day commentary regarding GlaxoSmithKline’s investment in 23andMe to gain...
Announcing SPM’s new Doc Tom Awards. Nominations are open!
It's here: our Society's new Doc Tom Awards are open for nominations! Spread the word, and join us at our second annual conference on October 17 for the award! If you don't yet know about Doc Tom Ferguson, founder of the e-patient movement, read our /DocTom page. To...
Study: Engaging patients in co-design works. Join us at our #SPM2018 conference Oct 17!
Engaging patients in care design leads to higher level results – the kind of thing you’d hire big fancy consultants to do. Who knew?? We did!
Patient Ownership of Data?
Do you care about health data ownership and want to stay abreast of national initiatives to wrestle with and solve ownership issues? If so, this post is for you. What does it mean to own my health data? Is it like owning my car or my house? Is it like a copyright? Do...
Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ET
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it's a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to enlarge)...
Originally published six years ago - as good as new today! The empowered patient, skeptical of professional authority, is not a new phenomenon: s/he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning...
Medicare Holds Out Promise of Health Record Access Revolution
This is the second of two posts about this important policy issue regarding portability of our medical records. The first provided background, with link to a PDF of the comments SPM submitted, largely authored by Michael Millenson, who provides this essay for context....
