e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
SPM member & husband try to get care from one of the “best systems in the world.” #Fails.
Sunnie Southern is an avid activist for better care, a proactive patient (very responsible), a long-time member of our Society for Participatory Medicine, and a good friend with an irrepressibly bright disposition. As I often say, "I've never seen anyone with a more...
Eric Topol: Landmark Digital Medicine Trial: Patient-Generated Data Improve Cancer Survival
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
From the UK: “Habits of an Improver”
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
Closing the Gaps in South African Health
Guest post by SPM member Vanessa Carter. See bio at end. In many countries globally, the e-Patient revolution has raised many significant questions about the role of empowered patients in an integrated health system, particularly with expanding access to Information...
Allie Davanzo: The Power of Art in Medicine
This is a guest blog post by Allie Davanzo. Allie was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Allie Davanzo is a sophomore Public Health major at The College of New Jersey who hopes to...
How Data Registries Help with Full Information at the Point of Care
The practice of medicine is shifting from episodic patient care to care focused on addressing many broad-based, unique, sometimes esoteric health conditions. Fueling this transition is a new focus on patient reported outcomes and health data registries that aggregate...
e-Patients Drive the Conversation at CCCC’s 9th Palliative Care Summit
This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare...
Precision Prism
I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support...
Join SPM Newsletter Team as Editor and Bring Real News to Members!
The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and...
Our Journal of Participatory Medicine: an update, current metrics, how you can help
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal's site. Our Journal, begun as a grass roots initiative at the Society's formation, is a crown jewel. It was...
Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?
The Society for Participatory Medicine is pleased to announce that we will be partnering with the American College of Radiology to present an important topic in healthcare at the next Learning Exchange, which will take place on April 19, 2017, 2-3PM EST. Join us as...
“Words that annoy, phrases that grate”: BMJ Patient Panel post & tweetchat
We've written often here about the BMJ's leadership on not just listening to patients but looking at healthcare from the patient's perspective. Their patient partnership campaign, launched in 2014, includes a patient advisory panel that works actively to consult with...
