e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
RIP: Larry Weed, MD the creator of the Problem-Oriented Medical Record
Lawrence “Larry” Weed (born December 1923, died June 3, 2017) was an American physician, researcher, educator, entrepreneur, and author, who is best known for creating the problem-oriented medical record as well as one of the first electronic health records....
“Amenable mortality”: how well 195 countries deliver existing cures (or don’t, so you die)
What would you think if your fire department had expensive, snazzy fire trucks that failed to show up when needed? What would you think if a neighboring town had less fancy equipment but was incredibly dependable about using what it had? That's pretty much the issue...
SPM member & husband try to get care from one of the “best systems in the world.” #Fails.
Sunnie Southern is an avid activist for better care, a proactive patient (very responsible), a long-time member of our Society for Participatory Medicine, and a good friend with an irrepressibly bright disposition. As I often say, "I've never seen anyone with a more...
Eric Topol: Landmark Digital Medicine Trial: Patient-Generated Data Improve Cancer Survival
Eric Topol published a Commentary on Medscape describing a study published in JAMA in which cancer patients that tracked 12 symptoms and shared the tracking results with their health teams had a five months increase in survival equivalent with some of the most...
From the UK: “Habits of an Improver”
We in the Society for Participatory Medicine are in many stages of awakening to our potential as active participants in the health system. Some have a particular focus on a disease or a technology; many of us come to it through our own experience (good or bad) as a...
Closing the Gaps in South African Health
Guest post by SPM member Vanessa Carter. See bio at end. In many countries globally, the e-Patient revolution has raised many significant questions about the role of empowered patients in an integrated health system, particularly with expanding access to Information...
Allie Davanzo: The Power of Art in Medicine
This is a guest blog post by Allie Davanzo. Allie was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Allie Davanzo is a sophomore Public Health major at The College of New Jersey who hopes to...
How Data Registries Help with Full Information at the Point of Care
The practice of medicine is shifting from episodic patient care to care focused on addressing many broad-based, unique, sometimes esoteric health conditions. Fueling this transition is a new focus on patient reported outcomes and health data registries that aggregate...
e-Patients Drive the Conversation at CCCC’s 9th Palliative Care Summit
This post by SPM member MaryAnne Sterling is a thrilling sequel to our ongoing posts about CCCC (an organizational member of our Society) and its support for e-patients at their annual summit. MaryAnne is CEO of Sterling Health IT Consulting. She’s a healthcare...
Precision Prism
I’m the son, Custodian, and Healthcare Proxy of my 89-year-old mother, Alice. I live in a different state. My mother has diabetes and is depressed. Her care team, besides herself and me, includes medical providers in various health settings, community support...
Join SPM Newsletter Team as Editor and Bring Real News to Members!
The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and...
Our Journal of Participatory Medicine: an update, current metrics, how you can help
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal's site. Our Journal, begun as a grass roots initiative at the Society's formation, is a crown jewel. It was...
