e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
“Unmarried teens would jump off bridges”: NY Times on suppression of home tests
A large part of the Society for Participatory Medicine's work is culture change, and that requires pointing to the cultural roots of today's situation, so that well-meaning people today can understand how we got here, and how absurd today will look in the future. I've...
Teaching Health Communication with Participatory Medicine Highlights
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient...
New data from CMS insurance claims will empower consumer choice
A patient's ability to choose the provider they want depends largely on information - same as any other choice, right? So this blog has long praised The Leapfrog Group for its deep analysis and publication of hospital quality and safety data, through its Hospital...
Health 2.0: first conference to offer Patient Activist awards. Vote!
Voting ends Sunday July 31 Patient activists who attend conferences know that it's been a long climb to get patient voices welcomed. The #PatientsIncluded movement has been around for years, making small dents, but Health 2.0 is one of the best:Â while they don't...
Peter Elias: a physician experiences a portal from the family side, and… #fail
Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a...
“Sister” Organization! AACH: American Academy of Communication in Healthcare
SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common...
In our journal: exploration of gardening to foster engagement in stroke patients
A new article in our Journal of Participatory Medicine explores an area that apparently has had no prior literature: the effect of gardening on how well stroke patients engage in their care. From the abstract: Five main themes were identified from interviews and...
“Google to offer better symptom search”: Relief at last, or “Here we go again”?
Google announces its next revision of having medical authorities curate its search results. Should we be thrilled or careful?
“It’s not about the car – it’s about the drive.” #OpenAPS standing ovation for Mark Wilson.
This may be THE most important, articulate speech I've seen about profound progress in patient power - and why it matters. This talk by Mark Wilson about OpenAPS, at last Friday's DiabetesMine D-Data ExChange 2016, contains a metaphor that's just brilliant,...
OpenNotes on stage at live Washington Post event
Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we've often written about. OpenNotes director Tom...
Has your doctor ever talked to you like this Oliver Wendell Holmes quote?
A large part of our work here at the Society for Participatory Medicine is about changing culture of healthcare. In such times, I'd useful to look at our roots. Here's an attitude tidbit from 1871 that our friends at the BMJ published sixteen years ago. "FOUL,"...
Eric Dishman’s transformational speech on his last day at Intel: “Knowledge is survival”
https://vimeo.com/169280480 I've known Eric Dishman for about five years, because we're both kidney cancer patients. I've known that he's a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and involved in their work in healthcare. May...
