e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Peter Elias: a physician experiences a portal from the family side, and… #fail
Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a...
“Sister” Organization! AACH: American Academy of Communication in Healthcare
SPM member Danny van Leeuwen is @HealthHats on Twitter. Last week I attended the American Academy of Communication in Healthcare (AACH) Conference in New Haven – 2016 ENRICH Healthcare Communication Course and Research Forum at Yale, entitled, Diverse Voices, Common...
In our journal: exploration of gardening to foster engagement in stroke patients
A new article in our Journal of Participatory Medicine explores an area that apparently has had no prior literature: the effect of gardening on how well stroke patients engage in their care. From the abstract: Five main themes were identified from interviews and...
“Google to offer better symptom search”: Relief at last, or “Here we go again”?
Google announces its next revision of having medical authorities curate its search results. Should we be thrilled or careful?
“It’s not about the car – it’s about the drive.” #OpenAPS standing ovation for Mark Wilson.
This may be THE most important, articulate speech I've seen about profound progress in patient power - and why it matters. This talk by Mark Wilson about OpenAPS, at last Friday's DiabetesMine D-Data ExChange 2016, contains a metaphor that's just brilliant,...
OpenNotes on stage at live Washington Post event
Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we've often written about. OpenNotes director Tom...
Has your doctor ever talked to you like this Oliver Wendell Holmes quote?
A large part of our work here at the Society for Participatory Medicine is about changing culture of healthcare. In such times, I'd useful to look at our roots. Here's an attitude tidbit from 1871 that our friends at the BMJ published sixteen years ago. "FOUL,"...
Eric Dishman’s transformational speech on his last day at Intel: “Knowledge is survival”
https://vimeo.com/169280480 I've known Eric Dishman for about five years, because we're both kidney cancer patients. I've known that he's a really sharp thinker, and a high-ranking executive at Intel, deeply interested in and involved in their work in healthcare. May...
Just Say “No” to Medicare’s MACRA Tokenism
On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...
Fighting Cybercrime: One Hacker at a Time
Computer Crime is the misuse of a computer or associated electronic networking system in order to commit illegal and unlawful acts. Computer crimes range from the illegal use of the internet to the unlawful accessing of information stored in computer systems. In...
OpenNotes study in BMJ Quality & Safety finds patient-doctor “relational benefits”
As regular readers know, we've written many times about OpenNotes, the project funded by Robert Wood Johnson that blew the doors off of beliefs that bad things happen when patients see their charts. (We blogged about the original results in 2012.) Now a new study in...
#OpenAPS is bearing big fruit, part 2: Quantified Self presentation in San Diego
A truly significant moment in the history of medicine happened last Wednesday. I say that after attending almost 500 conferences and policy meetings in the past seven years, and I don't say it lightly. Something many people think is impossible was presented live on...
