by e-Patient Dave | Jun 5, 2018 |
Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post! Here’s their...
by Casey Quinlan | Mar 23, 2016 |
Our friends over at GetMyHealthData have put up a terrific post breaking down exactly how/why all people can access their health data. Get YOUR data – it’s yours! Here’s the whole GIF-rich party. Cats have nine lives to figure out how to get their...
by David Harlow | Feb 27, 2016 |
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
by David Harlow | Jan 12, 2016 |
A long time ago (in internet years), the original HIPAA regulations were promulgated. (The final Privacy Rule was published in 2000.) They’ve been tweaked and updated over the years, most notably in the “mega-reg” promulgated a few years back in...
by e-Patient Dave | Dec 10, 2015 |
One pillar of participatory medicine, as SPM co-chair Dr. Danny Sands often says, is access to our medical records: “How can patients participate if they can’t see what I see??” But a major impediment to free-flowing information is incompetence or...
by e-Patient Dave | Oct 22, 2015 |
Here’s something I’ve never done: I’m capturing a comment from this blog five years ago and making it a post of its own, so it’s easier to find, because I think this is going to be more and more of an issue. It’s clearer and clearer that,...
by Casey Quinlan | Mar 27, 2015 |
Participatory medicine and healthcare system transparency warrior Cyndy Nayer put this up on her blog this week, and we’re re-posting it here because it’s a message that’s got to spread. A personal account of a transaction that went very badly, and...
by David Harlow | May 1, 2014 |
The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...
by David Harlow | Mar 27, 2014 |
A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...
by David Harlow | Feb 4, 2014 |
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
Cost, In Any Other LanguageOctober 18, 2021
An Easy Way we can Help Encourage Healthcare Conferences to Include Patients & AdvocatesOctober 11, 2021
Social Work and The SPM Manifesto: It Just Makes SenseOctober 4, 2021
Video Series: Doctor to Doctor – How to be an Engaged PatientSeptember 27, 2021
Recent Comments