by Ileana Balcu | Jan 14, 2014 |
Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records:...
by Nancy Finn | Jan 3, 2014 |
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
by David Harlow | Oct 14, 2013 |
Meaningful Use Stage 2 includes the requirement that health care providers with EHRs seeking Meaningful Use incentive dollars demonstrate that 5% of patients actually view, download or transmit their data. The HIPAA/HITECH Omnibus Rule, which is now fully in effect...
by David Harlow | May 8, 2013 |
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
by David Harlow | Nov 30, 2012 |
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of “gimme my damn data”) is an in-depth, Page One Wall Street Journal story featuring Society for Participatory Medicine...
by e-Patient Dave | Oct 23, 2012 |
Quick, quick, do this now! Go add your signature to the hundreds who have already signed – this is about getting us access to our lab results, the same as any other health data! How important is this? Here’s a video of SPM member Ann Waldo discussing it...
by e-Patient Dave | May 28, 2012 |
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
by e-Patient Dave | May 20, 2012 |
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
by e-Patient Dave | Mar 23, 2012 |
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA –...
by e-Patient Dave | Mar 1, 2012 |
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There’s a new ending, at bottom. There’s nothing here that will be a surprise to any...
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Reflecting on the Importance of Ethics in Clinical Care and ResearchNovember 1, 2021
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