e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Fwd: [New post] Does scientific misconduct cause patient harm? The
Important quick update - pardon the lack of formatting - I'll try to clean it up later - ---------- Forwarded message ---------- From: Retraction Watch Date: Tue, Feb 19, 2013 at 4:22 PM Subject: [New post] Does scientific misconduct cause patient harm? The case of...
Reading our own EKG
There's been a great thread on Dr. Wes' blog and the SPM listserv about patients obtaining and reading their own EKG's.  As you can imagine -- lots of pros and cons. A significant difference noted between the right to have the information ("tracing") and the ability...
“My Health Counts: e-Patients” to premier on WNED!
This is the big update to our preview post last November. There's a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We've documented the progress: 2009: Susannah Fox was on NPR's Morning Edition:Â Participatory medicine and...
Regina Holliday: What I learned on the road to the Shortys
Cross-posted from Regina's own blog. Please vote for her Shorty Award nomination by posting a Tweet here through Monday, Feb 18. She only needs about 80 votes to get into the top six finalists in #activism. I'm cross-posting this for two reasons. First, in this post...
Health Affairs Patient Engagement Edition – with videos and commentary
The Health Affairs February 2013 issue is titled "New Era of Patient Engagement" and the content matches the title. Nick Dawson describes the day in his blog post Health Affairs is the new shirtless dancing guy Here's a short extract from the blog post. It's worth...
Why Walk–in Medical Clinics Provide a Good Alternative
According to a recent Harris Poll, walk-in medical clinics located in pharmacies, shopping malls, office parks and workplaces are getting more and more popular with health care consumers. The poll reported that of the 3,000 adults surveyed online, 27% said they have...
What if health care…?
For over a year I've been the accidental manager of a community garden. All I did -- I swear -- is point out an open plot of land and people started pitching in, planting, asking friends to join them. All of a sudden we'd transformed a bare patch into something...
PCORI Board Meeting, San Francisco, February 9, 2013
The Patient Centered Outcomes Research Initiative (PCORI) was established in 2010 by the Affordable Care Act with a mission to help people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity,...
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s...
HIMSS and S4PM collaborative – Advise us!
As you see in Sarah Krug's letter above, HIMSS and S4PM entered into a collaboration. I sit (with Ileana Balcu) on HIMSS' eConnecting with Consumers Committee where we advocated for this partnership. Everyone on the Committee could be a member of S4PM, as they live...
What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)
Major typo fix, 3:23pm - "they're giving" is not same as "they're given"! Sorry. This note arrived today from the Institute of Medicine. I'm in DC at the moment, at a big briefing by the Health Affairs policy journal about patient engagement, and a key issue keeps...
Closed systems collapse, open ones thrive: the Health Design Challenge
Next guest post by SPM member and former health system executive @NickDawson. Ilya Prigogine received in the Nobel Prize in Chemistry in 1977. His work largely focused on Non-equilibrium thermodynamics. What he found is as fascinating for scientists and non-scientists...
