e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
PCORI Board Meeting, San Francisco, February 9, 2013
The Patient Centered Outcomes Research Initiative (PCORI) was established in 2010 by the Affordable Care Act with a mission to help people make informed health care decisions, and improves health care delivery and outcomes, by producing and promoting high integrity,...
SPM and HIMSS announce collaboration and tweet-up (and book!)
Adapted from a letter distributed this week to members of our Society for Participatory Medicine, by President Sarah Krug. The Society for Participatory Medicine is excited to announce our collaboration on a variety of initiatives with HIMSS, one of the nation’s...
HIMSS and S4PM collaborative – Advise us!
As you see in Sarah Krug's letter above, HIMSS and S4PM entered into a collaboration. I sit (with Ileana Balcu) on HIMSS' eConnecting with Consumers Committee where we advocated for this partnership. Everyone on the Committee could be a member of S4PM, as they live...
What if we treated substandard *info* like substandard drugs? (Riff on an IOM report)
Major typo fix, 3:23pm - "they're giving" is not same as "they're given"! Sorry. This note arrived today from the Institute of Medicine. I'm in DC at the moment, at a big briefing by the Health Affairs policy journal about patient engagement, and a key issue keeps...
Closed systems collapse, open ones thrive: the Health Design Challenge
Next guest post by SPM member and former health system executive @NickDawson. Ilya Prigogine received in the Nobel Prize in Chemistry in 1977. His work largely focused on Non-equilibrium thermodynamics. What he found is as fascinating for scientists and non-scientists...
Cristin Lind: My new litmus test for patient-centeredness
Guest blogger Cristin Lind is an e-caregiver and e-patient; her personal blog is called Durga's Toolbox. When trying to find a definition for what real patient- or family-centered care looks like, I can easily to get caught up in inspirational jargon. But a recent...
Monthly introduction to e-patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
Minnesota Supreme Court sides with patient on social media defamation suit
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There's a moment where something changes direction, irreversibly,...
Final HIPAA Privacy & Security Rule – What’s in it for Patients?
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other...
How to Provide Emergency Medical Services to Everyone
News outlets across the country reported recently that the 2013 flu season is bringing so many people to the emergency departments of hospitals throughout the country that many hospitals are setting up tents to handle the overflow. The ED has been a...
The Case for Being On Top of Your Case
Guest post by Elaine Waples, one of our new (today) members of SPM (with her husband Brian Klepper). This story illustrates one of the core dysfunctions in American medicine today - lack of coordination - and makes a compelling case for patients and families to be...
Eric Topol at Rock Health
Thanks to Carla Berg for sharing this: Eric Topol was on Rock Center tonight. He talked about the patient empowerment and give us our data themes he brings up towards the end, he did everything but mention #gmdd and patients in the drivers seat explicitly. The key to...