e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Final weeks: Register & attend Regina’s “Partnership WITH Patients” conference
Yes, "Regina" - you know who I mean.:-) You know someone's a star in the firmament when they gain first-name status. (Especially in healthcare, where "the other Regina" happens to be Surgeon General!) As we reported here in June, Regina Holliday has led a band of...
New IOM Report To Be Released Sept 6 (webcast)
Our friend Jim Conway, revered advocate for better care, writes: To my colleagues in the patient and family centered care, personal and public engagement community. On September 6th the IOM will release a new report on building a learning healthcare system, “Best Care...
#S4PM #BigData Tweetchat on Wed Aug 29 – 8 PM ET / 5 PM PT
On Wed 8/29/20012 at 8 PM ET / 5 PM PT please join us for a Tweetchat hosted by SPM member Janice McCallum @janicemccallum about Big Data in Healthcare. One good way to participate is to use the website http://tweetchat.com/room/s4pm Go to the site at the right time,...
“Mind the Gap” on patient engagement: uck, “What???” and the scapegoat disconnect
Over on Mind The Gap, Steve Wilkins (Twitter) has a poster about patient engagement that annoyed me:-) right out of the box - because although I pretty much like everything he does, the poster starts with what I find to be the ouchiest mental disconnect in all of...
State of the Meme, summer 2012
We're not in it for "the eyeballs," as they say in the world of website marketing: this isn't a blog that obsesses about pageviews, unique visitors etc, for purposes of selling ads. (We don't do ads, we don't do link exchanges, etc.) But the Society for Participatory...
Hey lurkers – hi! Step right up, speak up here!
For a couple of years I've been wondering when controversy and snark would hit this movement. Looks like it showed up this morning. Today one of our members posted on our members-only email group: I was on a phone call recently with some colleagues in health IT and I...
New SPM Members Bring Magic Levers and Untanglers for Healthcare
This listserv exchange between new Society for Participatory Medicine members is a nice example of how "newbie" e-patients often come to us with decades of experience and well-honed (and well-blogged) philosophies of what healthcare should be and can be. From:...
ONC Video: It’s time healthcare caught up with the way we live the rest of our lives
I’ve been in healthcare for awhile, yet must admit that a lot of information packaged for patients/consumers is pretty dry and not too creative. Content, often developed by health professionals or educators, can be medical-heavy and design-light. My litmus test when...
Eve Harris: Health coaches and involving patients in primary care decision making
Another blog post from Eve Harris on KQED describing the use of medical assistant health coaches to help patients make and keep their health care goals. http://blogs.kqed.org/stateofhealth/2012/07/26/primary-care-efforts-to-involve-patients-in-decision-making/ Go...
Benoit Bisson: Being a patient knows no boundaries
Guest blogger Benoit Bisson, a kidney cancer patient, journalist and SPM member in Montréal, offers an international perspective on the participatory medicine movement. He's @Benoit_Bisson on Twitter; his blog is BenoitBisson.com. Guest post submissions are welcome...
SUITS and VOMIT: fun at the ABIM Foundation Forum
As noted a few days ago, I've been at the ABIM Foundation Forum. This is, frankly, the most heartening event I've been to: the Foundation people are working hard to generate real transformation in the practice of medicine, including the new Choosing Wisely campaign...
XX in Health: Women Leading Healthcare
Here's a video that had me at hello -- it leads with data, then follows with insights from people I admire: If you're intrigued, look for other posts about women in healthcare on Twitter by searching for the hashtag #xxinhealth. And for more wisdom from women in...