e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology's role in promoting participatory medicine on KQED's State of Health blog. Harris discusses tools familiar to most e-patients, but what's really noteworthy here is the evidence that more...
Gangadhar Sulkunte: TEDMED 2012 Highlights
For those who didn't make it to TEDMED 2012, here's a brief overview of sessions of interest to e-patients, from SPM member Gangadhar Sulkunte. This originally appeared on his blog. Also noteworthy was TEDMED's acceptance of "The Role of the Patient." as on of its...
SPM Tweetchat last night: Patients at conferences
From SPM communication team leader Ileana Balcu: Lisa Fields @PracticalWisdom hosted an wonderful chat last night on the topic of patient presence at conferences. Lisa was a great host and we had a record number of paticipants. Please skim through the transcript on...
Regina Holliday in Newsweek (Shannon Brownlee on hurried docs and lack of care)
What news to wake up to - SPM's "resident artist" Regina Holliday is in Newsweek. It's not a happy story - nothing about her story is - but it's good to see such things getting the visibility they deserve. The article, by Overtreated author Shannon Brownlee, is The...
“The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data
Updates: The text below the video was added later on 4/17, and the graphic was added 4/18. For me the evidence highlight of TEDMED last week was a talk by Ben Goldacre MD (@BenGoldacre), a charming and articulate doctor who's dug deeply into what seems to be...
Patient Engagement shows up big in special WSJ section on Healthcare Innovations
Thanks to SPM co-founder Joe Graedon of PeoplesPharmacy.com for this note about today's special section in the Wall Street Journal on healthcare innovation. (Some of the content requires a subscription, but you can register for 8 weeks free.) Joe's note, with...
Regina Holliday / Ted Eytan interview: StoryCorps audio, now in the Library of Congress
One of the best-known sad stories in the e-patient movement is that of SPM member Regina Holliday, her husband Fred, and their two children. Fred died three years ago of kidney cancer in a series of failures of American healthcare, leaving a story that Regina now...
Petition and Call for Public Comments (from you): Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use
SPM member Brian Ahier posted this petition notice - and call for comments to the government - on the SPM member listserv. Written by Dave Chase of Avado, it deserves public attention. ONC: Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use Why...
TEDMED and RWJF accept “The Role of the Patient” as a Great Challenge
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, "We must vote." You did. We're in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and click "The 20 Great...
A Season in Hell
Author Mark Dery's eloquent essay on his hospitalizations for cancer and complications is clearly one of the best - and most disturbing - patient stories we've read. [Link]
Health 2.0 Tools: Recommendations from a Net-Friendly Doc
This week in ScienceRoll, Dr. Bertalan Meskó blogs about several links that the e-patient community will find interesting: IBM Clinical Genomics Helps with Clinical Decision Making Haifa, Israel has developed a new clinical decision support tool that correlates a...
Help TEDMED focus on what patients want. Vote.
Correction 4/12: I'm glad to say that there are in fact several patient speakers at TEDMED. There was a massive communication disconnect in the months leading up to this TEDMED, leading to my impression that there were no patient speakers; I hope to find out how it...
