e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Petition and Call for Public Comments (from you): Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use
SPM member Brian Ahier posted this petition notice - and call for comments to the government - on the SPM member listserv. Written by Dave Chase of Avado, it deserves public attention. ONC: Strengthen the Patient Engagement requirements of Stage 2 Meaningful Use Why...
TEDMED and RWJF accept “The Role of the Patient” as a Great Challenge
We posted Wednesday about the Great Challenges program at TEDMED, created by TEDMED and the Robert Wood Johnson Foundation. We said, "We must vote." You did. We're in. To see all the challenges that were accepted, go to Challenges.TEDMED.com, and click "The 20 Great...
A Season in Hell
Author Mark Dery's eloquent essay on his hospitalizations for cancer and complications is clearly one of the best - and most disturbing - patient stories we've read. [Link]
Health 2.0 Tools: Recommendations from a Net-Friendly Doc
This week in ScienceRoll, Dr. Bertalan Meskó blogs about several links that the e-patient community will find interesting: IBM Clinical Genomics Helps with Clinical Decision Making Haifa, Israel has developed a new clinical decision support tool that correlates a...
Help TEDMED focus on what patients want. Vote.
Correction 4/12: I'm glad to say that there are in fact several patient speakers at TEDMED. There was a massive communication disconnect in the months leading up to this TEDMED, leading to my impression that there were no patient speakers; I hope to find out how it...
Scott Strange: The Only “Thing” that Can Empower You Is You
This guest post by SPM member Scott Strange originally appeared on his blog, Strangely Diabetic. Scott will host this week's #s4pm Tweetchat on Wednesday, April 11 at 8pm Eastern/5pm Pacific (username @Strangely_t1) on #diabetes. It seems that every day we read a new...
System 1, System 2, Elephants and Illusions
One of the principal areas to be understood and developed as we expand participatory medicine is decision making. As patients become "responsible drivers of their care, and providers welcome and value them as full partners," patients participate in decisions - and...
Self-Service Healthcare?
In a recent commentary on the American Public Media program Marketplace Money, Francis Frei discussed the failure of self check-out at supermarkets. Her insightful commentary is clearly based on both personal experience as well as her professional knowledge of...
JoPM: “Making Every Second Count” at the Doctor’s Office
Co-Editors-in-Chief Joe and Terry Graedon tell patients how to get the most out of today's all-too-brief medical office visits in the April editorial of the Journal of Participatory Medicine. "Making Every Second Count – What We Can Do As Patients" complements JoPM's...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
The DIY Clinical Trial – Health Blog – WSJ
When Medicine Really Gets Personal:Â The DIY Clinical Trial - Health Blog - WSJ http://blogs.wsj.com/health/2012/03/30/when-medicine-really-gets-personal-the-diy-clinical-trial/
Consumer Reports: Medical devices are rarely tested
Consumer Reports notes that medical devices are rarely tested to determine whether they're safe. Consumers Union's Safe Patient Project is gathering stories from patients who've had a problem with an implant or a medical device. The Project is hosting a Twitter chat...