e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post's title originally said HHS was seeking patients. Actually it's PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn't part of HHS. The title also said "None are...
Federales finalize Accountable Care Organization regs, define “patient engagement” and “patient-centeredness”
The Patient Protection and Affordable Care Act (aka the health reform law) added "patient engagement" and "patient-centeredness" to the United States Code's lexicon. Â Yesterday, the Centers for Medicare and Medicaid Services finalized the official definition of these...
Is “Gimme my damn data” coming to radiology at last??
An essential aspect of participatory medicine - and Federal meaningful use criteria - is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue here: three...
“Know Your Numbers”: new music video parody that gets good things stuck in your ear
It's wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN's Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy music video...
“WhiteOut” campaign (give babies real food, not white rice) wins HCHW Prevention award
Last week at a gala in Beverly Hills, our society's co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians' recommendations about baby's first food. He...
Health Info Have-Nots
I just published a quick take on who doesn't gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited dates...
Invitation to Connected Health Attendees, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 - 8:00 pm. If you're attending the Connected Health Symposium in...
The Patient Activation Measure (PAM): a framework for developing patient engagement
In any movement there's a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) Â earns attention, the question increasingly arises: "Where do we start?...
“When I became a patient, I felt my identity slipping away.”
Participatory medicine requires an empowered partnership, in which patients express their wants and pursue their goals in partnership with providers who hear them and work together. And that's not just about the biology. In this powerful narrative, a hospital...
e-Patient Training via TED Talk: “Battling Bad Science”
We've often said here that when an e-patient wants to be responsible for treatment decisions, it's essential to know how to evaluate the research about each option. A common mistake is to trust, blindly, news reports about a treatment, or even to trust, blindly, the...
Conference Season: Patients and Caregivers Welcome
We are deep into the fall conference season. One of my favorite trends is the increasing rate of inclusion of patients and caregivers at health care events, on stage or in the audience. The California HealthCare Foundation was a pioneer in this regard. Patients 2.0,...
e-Patient Dave corrects a “troll”
e-Patient Dave deBronkart is profiled in Technology Review, and at his own site responds to a "troll" whose comment on the Technology Review piece is dismissive of his e-patient experience.