e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
What do Participatory Medicine and OWS have in common?
The short answer is "plenty" but the longer one will have to wait. This is a work in progress, but in the meantime, I'm surfing the net and finding great stuff to share. In particular, see this video or read the transcript of ethicist Harriet Washington being...
JoPM: Patient-oriented content on hospital websites
The Journal of Participatory Medicine has published a research paper entitled "Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices." The study analyzed the content of 14...
Lisa Gualtieri: Must waiting be inherent to medical care?
This guest post by Lisa Gualtieri originally appeared in the author's health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and the...
Next “doctor as e-patient”: Howard Luks, MD
We've sometimes written about doctors as e-patients. (There are a lot!) Here's the next. SPM member Howard Luks MD, orthopedist, had some symptoms. He spoke to his physician and GI doc, who gave him pills. It didn't make sense to him. So he did what a lot of us do:...
Steve Jobs’ Cancer Denial
The 60 minutes interview with Steve Jobs' biographer is an intriguing piece that gives us a few insights into Steve Jobs and his battle with pancreatic cancer. But the most disturbing part of the interview for me was watching Walter Isaacson, a former editor of TIME...
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post's title originally said HHS was seeking patients. Actually it's PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn't part of HHS. The title also said "None are...
Federales finalize Accountable Care Organization regs, define “patient engagement” and “patient-centeredness”
The Patient Protection and Affordable Care Act (aka the health reform law) added "patient engagement" and "patient-centeredness" to the United States Code's lexicon. Yesterday, the Centers for Medicare and Medicaid Services finalized the official definition of these...
Is “Gimme my damn data” coming to radiology at last??
An essential aspect of participatory medicine - and Federal meaningful use criteria - is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue here: three...
“Know Your Numbers”: new music video parody that gets good things stuck in your ear
It's wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN's Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy music video...
“WhiteOut” campaign (give babies real food, not white rice) wins HCHW Prevention award
Last week at a gala in Beverly Hills, our society's co-founder Dr. Alan Greene was honored for his amazingly effective, empowering, democratizing WhiteOut initiative, which in six months has radically altered pediatricians' recommendations about baby's first food. He...
Health Info Have-Nots
I just published a quick take on who doesn't gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited dates...
Invitation to Connected Health Attendees, 2011
Please join us for the 2nd Annual Society for Participatory Medicine Cocktail Reception, taking place on Thursday, October 20, 2011 at the Liberty Hotel in Boston (http://www.libertyhotel.com/) from 6:00 - 8:00 pm. If you're attending the Connected Health Symposium in...
