e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
ABCNews.com: “The Biggest Wasted Resource in Health Care? You.”
ABCNews.com has posted a great new piece by Roni Zeiger MD, "The Biggest Wasted Resource in Health Care? You." Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It's well reasoned and clearly written, and continues the trend we cited a...
Invitation: crowdsource the definition of “Patient Centered Outcomes”
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family's intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in defining...
IHI releases video of SPM’s keynote
The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI's annual Forum in December. At this event the IHI did two extraordinary patient-oriented things: they...
Patient Experience of Care: Measuring and Incentivizing High Performance
There is a growing recognition within the medical-industrial complex that the patient is a key element of the enterprise, and that patient satisfaction, patient experience, patient engagement, patient activation, patient-centeredness are very important. Some research...
Documenting and promoting Open Innovation: The Open 100 wiki
We in the "open health" community need to add to this new wiki. Who's better than the Society for Participatory Medicine?? Specifically: Last week Aman Bhandari (@GHIdeas - Global Health Ideas) tweeted about something that's exciting because it's thought-provoking and...
Guest Post Guidelines
This page is obsolete. For blog posts, see the https://participatorymedicine.org/epatients/GuestPosts page. Articles for our Journal of Participatory Medicine: see guidelines here.
A Health Information Divide
This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to...
February retrospective on e-patients.net
Researching recently I wound up looking at where we were two years ago -Â February 2009, just as the Society for Participatory Medicine (SPM) was forming. Fascinating to see what topics were live then and are still relevant today - this community has focused on some...
“Electronic Health Records Do Not Impact the Quality of Healthcare?”
We've recently been talking here about problems with poor study design in clinical trials. A health IT version of this problem raced through the newswires this week while I was on the road. The news coverage was particularly naïve, illustrating our point. I'll say at...
Why Almost Everything You Hear About Medicine is Wrong (Newsweek)
Update 1/29: in a comment, Gilles Frydman pointed out that Newsweek's Sharon Begley wrote this article almost two months before the New Yorker piece appeared - and the editors held the article, apparently due to pressure from a pharma advertiser whose product is cited...
What people living with disability can teach us
The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is,...
SPM’s response to the PCAST recommendation on Health IT
Click the image to view the letter we submitted last week to ONC, commenting on the December 10 report of the President's Council of Advisors on Science and Technology (PCAST) about health IT. The response was driven by SPM policy chair David Harlow and approved by...
