by e-Patient Dave | Mar 19, 2009
Update 3/21: For easier reference, I’m editing this to incorporate some goodies from comments below. Here’s a little game that just might turn into something transformational. Since I started learning about this world of participatory medicine, I’ve...
by Gilles Frydman | Mar 12, 2009
Cross-posted from my own blog. Truth be told, at present, the activities of “La Cosa Nostra” are more transparent that what goes on in the health care system. The only certainty I have, as an individual trying to figure out what is not wrong with the...
by Gilles Frydman | Mar 10, 2009
Cross-posted from my own blog. During 2 weeks in December 2008, over 9,000 Americans in all 50 states and the District of Columbia registered to host a health care community group to discuss healthcare reform. Thousands more participated in these gatherings. They all...
by e-Patient Dave | Mar 8, 2009
I have a fairly geeky abstract question about one aspect of the e-patient world. It’s not pivotal for issues of empowerment, access to care, etc, but as my friends and I keep learning about participatory medicine, the topic of social networking keeps coming up....
by Gilles Frydman | Mar 6, 2009
Cross-posted from my own blog. Laura Landro, in Wednesday’s WSJ, wrote a great article, “Finding a Way to Ask Doctors Tough Questions” about the fact that it remains difficult to challenge health professionals about any aspect of the work they do....
by e-Patient Dave | Feb 22, 2009
Unless you’ve been offline since Wednesday, you know that Medpedia has gone into public beta. I have a concern about the reliability of their model, based on my personal experience and the self-education I’ve been doing for the past year. I want to lay out...
by e-Patient Dave | Feb 21, 2009
At the 25th annual TEPR+ conference in Palm Springs on Feb. 2, Alan Greene (DrGreene.com) gave the opening address. It was inspiring – I wish we had a video of it. Too bad so many attendees opted to skip the keynotes and fly into town late! Like, did you guys think...
by e-Patient Dave | Jan 27, 2009
One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I’d experienced excellent care in almost all ways, it showed that I as a patient have far more to...
by Susannah Fox | Jan 8, 2009
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement...
by Christine Gray | Dec 23, 2008
Pass the Valium! Previously on e-Patients.net I recounted the crazy-making quest for a second opinion on an abnormal mammogram (microcalicifications) as per the advice of New York Times health columnist Jane E. Brody, a breast cancer survivor. Â The gynecologist who...
by Gilles Frydman | Nov 3, 2008
Everybody can say this simple French word. Ludique Definition:Â (adj) related to games, playful, recreational Could it be what’s missing from many of the health & wellness Health 2.0 applications I have seen so far? Why would that be important? Last I wrote...
by Gilles Frydman | Oct 30, 2008
Too many years witnessing the same thing. First in the ACOR system. Then in many conferences about eHealth, e-Patients and now Health 2.0 and the Connected Health symposium at Harvard Medical School. Why is an entire segment of the US population almost completely...
by e-Patient Dave | Oct 28, 2008
Where have we heard this story before? A friend of mine slipped on the sidewalk recently and broke her hip. She had surgery in one of the best hospitals in the country. But it [wasn’t their staff, it] was her grown daughter who noticed that she was having an...
by Alan Greene | Oct 26, 2008
Thomas Jefferson had a radical notion: When the people are well-informed, they can be trusted to govern themselves. This powerful idea worked to end our rule by the King, but at the time it didn’t apply to slaves; it didn’t apply to women. It STILL...
by Susannah Fox | Oct 24, 2008
An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project’s latest data on social media and how the participatory Web is...
by Gilles Frydman | Oct 22, 2008
JAMA has an interesting Patient Page on quality of care. The definitions of e-Patients and Participatory Medicine mention or point to quality of care. Are we talking about the same thing? NOT AT ALL! If the patient page of JAMA represents the official position of the...
by Susannah Fox | Oct 21, 2008
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. Â The researchers created a “Patient Activation Measure” and apparently 41% of...
by e-Patient Dave | Oct 16, 2008
As an empowered patient I’m willing to go to the ends of the earth to help the medical community get beyond the famed “culture of blame,” so everyone involved can learn from errors. Boston’s Beth Israel Deaconess Medical Center had a wrong site...
by Gilles Frydman | Oct 13, 2008
“I noticed that my spellchecker doesn’t recognize ‘subprime’. […] I am guessing that will be remedied soon. “in the Beginning” Stephen J. Dubner; 09/30/2008 This is so true! Just like e-patient and participatory medicine! None of these...
by John M. Grohol, Psy.D. | Oct 11, 2008
This blog is a project of the Society for Participatory Medicine. To contact us: Blog team: blog at participatorymedicine.org Society for Participatory Medicine: Â info at participatorymedicine.org Journal of Participatory Medicine (JoPM.org):...
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