by e-Patient Dave | Jul 23, 2009
Guest post by Kent Bottles, M.D., President of ICSI. Preface: The Institute for Clinical Systems Improvement is a Minnesota-based non-profit that “brings together diverse groups to transform the health care system so that it delivers patient-centered and...
by Susannah Fox | Jul 16, 2009
The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press...
by Sarah Greene | Jun 26, 2009
“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and...
by Gilles Frydman | Jun 15, 2009
The wonderful Atul Gawande delivered this past Friday a commencement address, titled “Money,” to the graduates of the University of Chicago Pritzker School of Medicine. He touched on and expanded on the theme of his groundbreaking article “The Cost...
by Jon Lebkowsky | Jun 14, 2009
Physician Pauline Chen writes about “Medicine in the Age of Twitter” for the New York Times. The article suggests the need for our upcoming peer-reviewed Journal of Participatory Medicine:…a quick scan through peer-reviewed journals reveals only a...
by Gilles Frydman | May 30, 2009
Background information: The Certification Commission for Healthcare Information Technology (CCHIT) is currently in a monopolistic situation since it is, for the last few years, the only entity allowed to certify EHRs. The HITECH act of ARRA mentions specifically the...
by Alan Greene | May 27, 2009
Not Your Father’s Doctor-Patient Relationship – A Positively Revolutionary Approach In pediatrics, research has shown that not all parenting styles produce equal outcomes. Researchers often categorize parenting styles into four groups according to parents’ level of...
by Gilles Frydman | May 19, 2009
Another post about healthcare “creepware” from Opaque, Inc. While reading the Wall Street Journal health blog, I saw this disturbing piece of information: In a new survey conducted by Mercer, the employee benefits consulting shop, nearly half of the 428...
by Gilles Frydman | May 12, 2009
Magical thinking: the ability to draw conclusions that are based on a person’s desire for what reality should be, not necessarily upon what reality actually is. Cargo Cult HIT: Concepts in HIT that follow all the apparent precepts and forms of evidence-based...
by e-Patient Dave | May 10, 2009
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me...
by e-Patient Dave | May 10, 2009
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and...
by e-Patient Dave | Apr 30, 2009
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical...
by Gilles Frydman | Apr 30, 2009
An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step...
by Gilles Frydman | Apr 29, 2009
I have been following with real interest the notes and discussions about the Health 2.0/Ix conference that took place in Boston last week. I am not willing to get involved in this discussion because in some ways I think it missed the most important aspect of the...
by e-Patient Dave | Apr 26, 2009
One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of...
by Susannah Fox | Apr 23, 2009
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes...
by Gilles Frydman | Apr 20, 2009
Neither health professionals nor patients can do it alone. Let’s make no mistake: We are here to participate and to help! e-Patient Dave original story of the health data transfer from his hospital EHR to Google Health PHR is remarkable in many ways and shows...
by e-Patient Dave | Apr 19, 2009
This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here. As I said in the the previous post, “Let me make clear, I personally have only one agenda: to empower, equip...
by e-Patient Dave | Apr 18, 2009
Today’s Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I’m the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex...
by e-Patient Dave | Apr 17, 2009
A few items before I head off to the day job: As my hospital’s CIO John Halamka posted Monday, we had a concall Wednesday night. He, Roni Zeiger of Google, my physician Danny Sands and I spoke for an hour about this entire broad topic....
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