by Alan Greene | Oct 26, 2008
Thomas Jefferson had a radical notion: When the people are well-informed, they can be trusted to govern themselves. This powerful idea worked to end our rule by the King, but at the time it didn’t apply to slaves; it didn’t apply to women. It STILL...
by Susannah Fox | Oct 24, 2008
An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project’s latest data on social media and how the participatory Web is...
by Gilles Frydman | Oct 22, 2008
JAMA has an interesting Patient Page on quality of care. The definitions of e-Patients and Participatory Medicine mention or point to quality of care. Are we talking about the same thing? NOT AT ALL! If the patient page of JAMA represents the official position of the...
by Susannah Fox | Oct 21, 2008
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. Â The researchers created a “Patient Activation Measure” and apparently 41% of...
by e-Patient Dave | Oct 16, 2008
As an empowered patient I’m willing to go to the ends of the earth to help the medical community get beyond the famed “culture of blame,” so everyone involved can learn from errors. Boston’s Beth Israel Deaconess Medical Center had a wrong site...
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