Health Data Archives - Page 2 of 10

The Precision Medicine Initiative, Patients’ Health Data Rights and You

by David Harlow | Feb 27, 2016

The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...

#NoMUwithoutME: Primary School Edition

by Casey Quinlan | Apr 18, 2015

Created using Bitstrips. Text engine: Up Goer Five, “Can you explain a hard idea using only the ten hundred most used words? It’s not very easy.” Bottom line: When you go to the doctor, any doctor, always ask for your...

Patient Generated Health Data webinar featuring SPM members

by Casey Quinlan | Jan 14, 2015

The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year’s event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington...

OpenNotes & Transparency: Ongoing conversation

by Casey Quinlan | May 1, 2014

OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...

The Iceberg Waiting for Your Health Care Data

by David Harlow | May 1, 2014

The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...