by e-Patient Dave | Aug 11, 2009
Patient safety is important, and the safety of internet health data has been an ongoing concern for ages. We now have a great addition to the literature: “Trying to Measure the Quality of Health Information on the Internet: Is It Time to Move On?”...
by e-Patient Dave | Jul 15, 2009
Important addition 7/16/09 6:40 pm EDT: Be sure to read the HIPAA clarification by commenter “SLC” below, and any subsequent discussion. Dorothy Tillman was requesting her aunt’s records, not her own. This doesn’t change the need (IMO), but it...
by e-Patient Dave | Jul 1, 2009
Tuesday night, endorsement #906 on HealthDataRights.org came from a Judy Beckman, who says: “I agree all the way I cannot get MY records unless I pay for MY records $1.00 per page WHY WHY these are MINE???????????” Indeed, why? Whose data is it, anyway? This spring...
by Gilles Frydman | Jun 28, 2009
Guest Post: Cindy Throop from http://Open-Health.us, a participatory forum dedicated to effectively including patients in the discussion, planning, and evaluation of health care reform. A lot of money is about to be invested in health care, particularly into health...
by Sarah Greene | Jun 26, 2009
“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and...
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