by Jessie Gruman | Aug 1, 2013 |
This summer, I am reflecting and writing about what I wish that I had known earlier about getting good care following active cancer treatment, based on my experience with five different cancer diagnoses and what I have learned from others. If you have been diagnosed...
by Jessie Gruman | Jan 17, 2013 |
(Originally published on the CFAH Prepared Patient Forum January 16, 2013) Sometimes, angry patients and dissident doctors and nurses warn us about the impending patient revolution – how health care is so unsafe, of such poor quality and so expensive for us patients...
by Jessie Gruman | Sep 14, 2011 |
Continuing the thread of the difficulty of making good decisions about prescription drugs: It appears that many of us think that FDA approval of a drug means safer and better…Not so fast:...
by Jessie Gruman | Sep 6, 2011 |
Have you followed the long and painful efforts to improve the information prescription drug manufacturers are required to provide us? Really, given that almost half of us in the US take at least one prescription medication daily, you’d think this would be a high...
by Jessie Gruman | Aug 25, 2011 |
Not really, but check out this new campaign by the Puget Sound Health Alliance aimed at getting the employees of their purchaser members (businesses and labor union trusts) to make better use of primary care. These videos* will make you chuckle / guffaw / giggle even...
by Jessie Gruman | Aug 5, 2011 |
Check out Gary Schwitzer of Health News Review on actions you can and should take. Part of a short five part video series....
by Jessie Gruman | Jun 28, 2011 |
Media coverage of the challenges we face in making good treatment decisions often focuses on and sensationalizes medical errors, catastrophes and risks. So it was great to see this impressive TV news clip circulated by Gary Schwitzer of HealthNewsReview.org in his...
by Jessie Gruman | Jun 16, 2011 |
RA Warrior Kelly Young inquires in a post on Dr. Howard J. Luks’ blog. Dr. Bryan Vartebedian of 33 Charts adds his answer in a post on Better Health. What do you think: Are there lines that patients shouldn’t...
by Jessie Gruman | Jun 13, 2011 |
Through Facebook and a Caringbridge blog, twenty-six year old Justin Anderson drew friends, family, and now the public into his experience after being diagnosed with brain cancer. His last post in the article is an update from Mount Everest, his latest feat after...
by Jessie Gruman | Jun 6, 2011 |
It is often difficult for adults to give their doctors full and accurate accounts of their illness. Doing so can be even more of a challenge for kids. Here is an interesting experiment in which adolescents were given video cameras to capture their experience with...
Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
Millenson in BMJ: When “patient centred” is no longer enough: the challenge of collaborative healthJuly 7, 2017
Webinar today, 11am ET: Increasing patient involvement in assessing new treatmentsJuly 5, 2017
What My 90-Year-Old Mom Taught Me About the Future of AI In Health Care (WBUR)June 21, 2017
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