by e-Patient Dave | Jan 12, 2012
Quick note as I run to the airport – Last May we reported on a study in process at Emory University about whether a “safety-net” (poor) population would engage with a personal health record. The preliminary results in that poster showed that what...
by e-Patient Dave | Jan 7, 2012
I just learned that the organization of SPM president-elect Sarah Krug, Cancer 101, has gotten what I consider a major acknowledgement. On his blog GeekDoctor.blogspot.com, John Halamka announced last month that his wife Kathy was newly diagnosed with breast cancer....
by e-Patient Dave | Jan 5, 2012
SPM member Fred Trotter is a member of the open source / innovator community that knows “hacker” as a noble word – people who disregard how something was intended to be used (by its designers) and rearrange the parts to suit their needs. Today on the...
by e-Patient Dave | Jan 3, 2012
As we work to re-engineer both the culture and the structure of healthcare, one question that constantly faces e-patients with uncommon or difficult conditions is: Where do I turn, to find genuine value? The traditional answer is “ask your doctor,” and...
by e-Patient Dave | Dec 31, 2011
It’s fitting that our last post of the year should be about a patient community … winning an award! ACOR’s “KIDNEY-ONC” kidney cancer patient community was recently honored with the “Maily” Listserv Choice award in this, the...
by e-Patient Dave | Dec 21, 2011
In the Society for Participatory Medicine we talk about patients shifting “from being mere passengers to responsible drivers of their health.” Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role...
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
by e-Patient Dave | Dec 2, 2011
A prime benefit of individual membership ($30) in our Society for Participatory Medicine is the right to participate in our members-only listserv. It was pretty sleepy a year ago, but these days it’s a hotbed of juicy discussions. Here’s something that...
by e-Patient Dave | Nov 30, 2011
We’ve often cited Gary Schwitzer’s Health News Review (@HealthNewsRevu on Twitter) as an invaluable e-patient resource. With a structured ten point evaluation process, the site’s many trained reviewers evaluate the reporting of health news. We...
by e-Patient Dave | Nov 22, 2011
As in 2009 and 2010, this year too we donate our top post at Thanksgiving to the Engage With Grace movement, encouraging people to participate in this very important discussion, at the time of year when we’re most likely to be together with families. Because it...
by Kathleen O'Malley | Nov 21, 2011
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we’re adding it here, four days after the...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. Hacía tiempo que teníamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
by e-Patient Dave | Nov 10, 2011
It’s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
by Kathleen O'Malley | Nov 9, 2011
Guest blogger Nancy Finn reports on the popularity of health apps. She is the author of e-Patients Live Longer. The Pew Internet & American Life Project conducted a national telephone survey of 2,277 adults in May 2011 and found that 83% own some kind of cell...
by Kathleen O'Malley | Oct 28, 2011
This guest post by Lisa Gualtieri originally appeared in the author’s health blog. “By the time you see the doctor, you’re either dead or you’re better,” my mother-in-law told me. She had to have multiple tests, all with long waits to get the appointments and...
by e-Patient Dave | Oct 20, 2011
An essential aspect of participatory medicine – and Federal meaningful use criteria – is patients having a copy of their health data, so they can (a) understand it and (b) take it wherever they want. That includes radiology images. This is not a new issue...
by e-Patient Dave | Oct 20, 2011
It’s wise to make healthy things fun, and even wiser to make them social (as touted by SPM member Phil Baumann RN’s Health Is Social). This week at the Mayo Center for Social Media, guru Lee Aase (@LeeAase) introduced a program that does both: a catchy...
by e-Patient Dave | Oct 14, 2011
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do...
by e-Patient Dave | Oct 5, 2011
We’ve often said here that when an e-patient wants to be responsible for treatment decisions, it’s essential to know how to evaluate the research about each option. A common mistake is to trust, blindly, news reports about a treatment, or even to trust,...
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