by Kathleen O'Malley | Sep 27, 2011
Guest blogger and SPM member Nancy Finn looks at ways to improve patient-physician communication. There has been a lot of discussion about patient/provider communication, partly driven by the move to electronic health records and the question of who has access to the...
by Kathleen O'Malley | Sep 25, 2011
Guest blogger Beth Austin shares her professional and personal advice on choosing the right doctor. She is the principal of Crescendo Consulting Group. I’ve spent a lot of time in my professional life knee-deep in articles on healthcare quality and medical...
by e-Patient Dave | Aug 31, 2011
Guest post by SPM member Gangadhar Sulkunte. We posted his family’s e-patient story two years ago. The FDA’s Risk Communication Advisory Committee has published a PDF book called  “Communicating Risks and Benefits: An Evidence-Based User’s...
by e-Patient Dave | Aug 17, 2011
I’m visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It’s like we’ve been ships in the night – not crossing...
by e-Patient Dave | Aug 8, 2011
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team....
by e-Patient Dave | Aug 6, 2011
O’Reilly Media’s Alex Howard, who tweets as @Digiphile, dropped this gem in the stream today: “1991: “The WWW project aims to allow links to be made to any information anywhere”-@timberners_lee http://j.mp/r8bckt /HT @Zee” Well...
by e-Patient Dave | Aug 5, 2011
One of the most common questions about e-patient skills is how to tell the difference between good and bad information, as we research. A wonderful resource just passed its first birthday: Retraction Watch, a blog that digs into the details when science falls short....
by e-Patient Dave | Jul 27, 2011
SPM co-founder and co-chair emeritus Alan Greene MD, of DrGreene.com, just posted this tasty numerical comparison. Remedy, he says? “Working together can be one of the best ways to prevent errors, which is one of the reasons I believe...
by e-Patient Dave | Jul 26, 2011
Now up on YouTube: You, the patient, are a vital component of medical decision making. Believe it or not, it’s worth your effort to find out about your treatment options! This informal FlipCam vignette models a physician encouraging the patient to ask:...
by Kathleen O'Malley | Jul 19, 2011
SPM member John Novack, of the Inspire.com patient communities, submitted this guest post by Wendy Station about another online community — another great example of patients engaging in their care, supplementing the value they get from their medical...
by e-Patient Dave | Jul 15, 2011
“Health is social,” says SPM member Phil Baumann, RN (@PhilBaumann) at HealthIsSocial.com. Slate has a dramatic story of how a mother’s Facebook network helped spot – rapidly – Kawasaki Disease, a rare auto-immune disease that the...
by e-Patient Dave | May 22, 2011
The Society for Participatory Medicine was well represented last week at the 14th  ICSI/IHI Colloquium. (ICSI is the Institute for Clinical Systems Improvement, a small midwestern think tank that’s way too poorly known.) SPM members who presented: Jane...
by e-Patient Dave | May 13, 2011
The comments below add significant thoughts to what I said – be sure to read them. A lot of people are intrigued with using “cloud” applications and storage for personal health data. This week we’re seeing what I think is the final nail in the...
by e-Patient Dave | May 6, 2011
Guest post by medical transcriptionist Kathy Nicholls, member of the Society for Participatory Medicine. This idea grew out of a discussion on the SPM members listserv. To join, see instructions at bottom. The world of health care is filled with abbreviations....
by e-Patient Dave | Apr 30, 2011
A vital aspect of participatory medicine is helping patients learn how to participate. This week I saw a great example of someone who’s doing it right. Here’s the story, including the patient aid for download. We hear a lot about...
by e-Patient Dave | Apr 23, 2011
Over on his eCare Management blog, Vince Kuraitis (Twitter) is running a little (so far) series on “Rebuttal to PHR Luddites.” His discussion reveals that the term “PHR” (personal health record) means different things to different people; to...
by Jessie Gruman | Apr 22, 2011
Here’s an interesting (though oddly titled) post by Jon Richman: Lies, Damn Lies and Pharma Social Media Statistics. It is interesting because it beautifully un-packs misreporting on a topic of great interest to e-patients. It is oddly titled because while the...
by e-Patient Dave | Feb 22, 2011
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family’s intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in...
by e-Patient Dave | Jan 21, 2011
Update 1/22: this was originally in our “Found on the Net” sidebar, but it’s attracted enough comments that it belongs in the mainstream. I was researching the coverage of statins on Health News Review, the great e-patient resource we’ve often...
by e-Patient Dave | Dec 20, 2010
Headline and body edited Oct 6, 2013: the original post talked about “practice variation,” but that was bad wording. The problem is unwarranted practice variation: variation that, when studied, is not warranted by actual differences between cases....
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