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Let’s crowdsource what a “good” medical record tool for patients is (and list some products)

by e-Patient Dave | Jul 27, 2014

Ah, social media. On Facebook a couple of hours ago, Swedish SPM member Sara Riggare posted: Responses were quick and robust: “Web MD has an app that you can download that I use. I find it pretty useful.” – Mark Burek “That’s a sticky...

Communicating the experience of illness in the digital age

by Susannah Fox | Jul 23, 2014

At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...

HIMSS blog: Thought Leadership – The Patient Perspective

by Ileana Balcu | Jun 10, 2014

Interesting blog at HIMSS by Pete Rivera: use the patient to redesign the workflow: Thought Leadership – the Patient Perspective For years, I advocated that health IT does not drive business. I still do. Rethinking your processes to leverage technology is just...

Patients Invited! Health Informatics Conference seeks Patient Participation

by Marge Benham-Hutchins | May 21, 2014

An international conference addressing information technology and communication in health (ITCH) will be held February 26 – March 1, 2015 in Victoria, British Columbia, Canada. Professor Stephen Hawking’s statement, “we learned to talk, we learned to listen, we...

Uri Goren TedxHIT video: Patients are Not Empty Carriages

by Ileana Balcu | May 15, 2014

Uri Goren is the General Manager of e-Pochonderiac a blog about healthcare and digital technology and also a digital health consultancy and agency working in Israel to support digital health in the local health and pharmaceutical industry and to promote the roll of...

Via @Cancer101: 10 things every patient needs to know

by Ileana Balcu | May 13, 2014

A handy one page chart from our Past President Sarah Krug through Cancer101 summarizes the best way to become an e-patient: Click to access top-10.pdf Here are a few points: You have a story to tell. Don’t be afraid to tell it. Make sure to write down and ask...