by Susannah Fox | Nov 26, 2009
Alexandra Drane and her team have a new post on The Health Care Blog about how to put this holiday to work in a new way. Here’s a snippet: Some conversations are easier than others Our original mission – to get more and more people talking about their end of...
by e-Patient Dave | Nov 23, 2009
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you’ve got learning...
by e-Patient Dave | Nov 16, 2009
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying...
by e-Patient Dave | Nov 15, 2009
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added)...
by e-Patient Dave | Oct 28, 2009
I wish I could have been at the Reshape2009 conference this month in the Netherlands. The Twitter buzz was stimulating, and the 6 minute opening video caused a lot of buzz. I didn’t get it all because it was in Dutch. Now, thanks to producer Lucien Engelen...
by Jon Lebkowsky | Oct 21, 2009
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by...
by Jon Lebkowsky | Sep 28, 2009
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it’s worth noting. And this time it’s a great sign for participatory medicine, because the news is that hospitals are engaging...
by e-Patient Dave | Sep 1, 2009
I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the...
by e-Patient Dave | Aug 14, 2009
Important update: it turns out the writer did get it right, and this was an editing error at the Boston Globe. See my comment August 17. —– As empowered, engaged patients we have a responsibility to evaluate the articles we read. A case in point is this...
by Sarah Greene | May 11, 2009
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed...
by e-Patient Dave | May 10, 2009
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me...
by e-Patient Dave | Apr 30, 2009
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical...
by e-Patient Dave | Apr 19, 2009
This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here. As I said in the the previous post, “Let me make clear, I personally have only one agenda: to empower, equip...
by e-Patient Dave | Apr 18, 2009
Today’s Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I’m the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex...
by e-Patient Dave | Apr 17, 2009
A few items before I head off to the day job: As my hospital’s CIO John Halamka posted Monday, we had a concall Wednesday night. He, Roni Zeiger of Google, my physician Danny Sands and I spoke for an hour about this entire broad topic....
by e-Patient Dave | Apr 12, 2009
Do you know what’s in your medical record? Does it contain mistakes or omissions? The extraordinary response to our April 1 post about data transfer from PatientSite to Google Health (86 comments so far) made us realize that the time has come for patients to...
by e-Patient Dave | Apr 9, 2009
I’ve been thinking a lot about where to take the discussion that’s exploded on my post about moving my data from PatientSite into Google Health. I’m hardly an IT guru, but as I said, I do work with data at my day job. And before we proceed,...
by e-Patient Dave | Apr 1, 2009
This is a complex post, so don’t jump to any conclusions. Two weeks ago (gad, was it that long?) I asked you to think about something for a few days: Imagine that for all your life, and your parents’ lives, your money had been managed by other people who had extensive...
by e-Patient Dave | Mar 30, 2009
IBM’s “Smarter Planet” blog has picked up e-Patient Dave’s post A Thousand Points of Pain, about how enmeshed and entangled our healthcare system has become, and the implications for people who want to design a transformed system. Dave added a...
by Gilles Frydman | Mar 23, 2009
This is the third post in the unfortunate series about conflicts of interest. You must be kiddin’! That’s all Scott Reuben, MD, the doctor Scientific American calls “a medical Madoff”, had to say after putting the last two handful of nails into...
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