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Crohnology Blog: Am I disabled?

by Ileana Balcu | Nov 10, 2015

The series of blog posts at the online community website Crohnology continues for patients with IBD. Duncan Cross has a post that is interesting for anyone with an autoimmune or other disabling chronic condition: Am I disabled? It discusses the Americans with...

Guest Post by Mary Beth Schoening: a Definition of the Engaged Patient

by Ileana Balcu | Sep 15, 2015

This is a guest post by our member Mary Beth Schoening. Mary Beth is co-founder of Behavioral Health Innovators, Inc. an organization combining the power of human compassion with technology, advanced research and best practices from industry to encourage healthy...

Sep 26 – Patient Summit on Diagnosis in Alexandria, VA

by Ileana Balcu | Sep 8, 2015

To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of...

A Turing test for diagnosis: BMJ evaluates online symptom checkers; good Globe article

by e-Patient Dave | Jul 10, 2015

A new article in the BMJ this week reports on a good, clever evaluation of 29 online symptom checkers, showing that some have a clue and some don’t. I love it; in my view the bottom line is “Some are better than nothing, none is near perfect, and some are...

Conference Organizers to Affected Patients: “Go Fund Yourself”!

by Casey Quinlan | Jul 3, 2015

SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund...

On Making Patient Reviews of Physicians More Useful

by David Harlow | Jun 27, 2015

I recently hosted a Google Hangout on Air entitled Patient Reviews of Physicians: The Wisdom of the Crowd? (presented by The Harlow Group LLC in association with The Society for Participatory Medicine). I spoke with Niam Yaraghi (Center for Technology Innovation, The...