by Nancy Finn | Oct 27, 2014
By Nancy B. Finn There has been so much discussion online and in the press about electronic health records and physicians sharing EHR data with patients via such tools as OpenNotes and Blue Button, that the personal health record (PHR) has been lost in the dialogue....
by e-Patient Dave | Sep 16, 2014
Today in our Society’s journal, SPM co-founders Joe and Terry Graedon of PeoplesPharmacy.com posted something I couldn’t agree with more: e-Patients Never Retire That’s kinda by definition, eh? But there’s an uppity Sixties edge to this, and...
by e-Patient Dave | Sep 10, 2014
Students of medicine (surely most MDs) will know the name Larry Weed, but I didn’t until a few years ago on this blog, when I learned that in 1999 our founder “Doc Tom” Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed...
by e-Patient Dave | Aug 9, 2014
This article was part of the big Health Affairs issue “New Era of Patient Engagement” (Feb 2013) which Ileana Balcu blogged about at the time. I’ve long been a fan of the Patient Activation Measure, which I wrote about here three years ago in The...
by e-Patient Dave | Jul 18, 2014
I know many of our readers already saw this, but, from her personal blog: In one way, I’m sad to see that her work at Pew is over. In her 14 years there, time after time her work made clear what was actually happening as people use the internet in pursuing...
by Marge Benham-Hutchins | Jun 17, 2014
Written in collaboration with Linda Trietler, MSN, RN – PhD student. Review of Kalisch, B. J. (1975). Of half-gods and mortals: Aesculapian authority. Nursing Outlook, 23(1), 22-28. As we work to develop a collaborative and patient centered health care system...
by Ileana Balcu | Jun 9, 2014
An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves – Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged...
by e-Patient Dave | Jun 4, 2014
A press release published Tuesday begins: Sharecare and Blue Button Host Twitter Chat to Help Consumers Take Control of Their Personal Health Information Gaining control of your health and your personal health information is more than just a convenience – it’s your...
by Nancy Finn | Mar 23, 2014
Approximately 98 % of the world’s population are now owners of cellphones, including many adults in remote, hard to reach locations. This proliferation of mobile devices has the potential to improve our ability to diagnose and track disease; to tackle and...
by Nick Dawson | Mar 13, 2014
I now ask all my patients, at the end of our visits, “Did I get it? Did I successfully answer your questions and address your fears?” Dr. Marc Katz is a cardiac surgeon in Richmond Virginia. His op-ed, ‘Participatory Medicine’ encourages partnership between patient...
by Casey Quinlan | Feb 26, 2014
Today – February 26, 2014 – the Journal of the American Medical Association (JAMA) published the results of a pilot study (note: click the link, and then click the JAMA Reader link button on the right side of the page for the full text) of a volunteer...
by Susan Woods | Feb 23, 2014
What do you think should be included in a course in Consumer Health Informatics (CHI) in a graduate medical informatics program? I know a graduate curriculum begging for input from the most engaged and empowered consumers, patient advocates, and technology and health...
by Nancy Finn | Feb 13, 2014
The ability to write something meaningful in140 characters, including a shortened URL, is the basis of Twitter. Over 500 million tweets go out every day to individuals who enjoy the simplicity, functional design, and speed of delivery that twitter offers, along with...
by e-Patient Dave | Feb 1, 2014
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here’s how to become a Society member, individual or corporate. Our publications: This...
by Nancy Finn | Jan 3, 2014
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
by Nick Dawson | Dec 19, 2013
The Society for Participatory Medicine, through its founders and mission, has a strong belief in the expertise of its patient members – many of whom identify as providers or journalists or have expertise in HIT, health economics and other areas. Patients, often...
by John M. Grohol, Psy.D. | Dec 19, 2013
Go ahead and type in virtually any health or mental health condition into Google. Heck, even try a popular medication or two. Time and time again, you’ll notice a reliable trend — 2 or 3 of the top 10 search results are nearly always going to be WebMD. But...
by Danny Sands, MD | Nov 27, 2013
As we know participatory medicine is based upon mutual respect: the clinician respecting the self-knowledge, experience, and wisdom that the patient brings to the collaboration and the patient respecting the knowledge, clinical experience, wisdom, and technical skills...
by Ileana Balcu | Nov 27, 2013
In this guest blog post, member Beatrice Tiangco describes some of the pain and suffering in the Philippines after the typhoon and expresses her gratitude for the SPM, local community and overall support. Beatrice Tiangco is a practicing Medical Oncologist from the...
by Susan Woods | Nov 12, 2013
Any of us would probably have paid to be at the gathering of over 1000 medical school deans, faculty and residents at last week’s American Association of Medical College’s (AAMC) meeting to hear Anna Quindlen deliver her speech, Healthcare in an Age of...
SPM at the World Orphan Drug ConferenceApril 6, 2026
Introducing the CHAMP Principal Investigator: Cait DesRoches (Part 2)April 1, 2026
Everylife Foundation Community Congress Annual Meeting HighlightsJanuary 19, 2026
Collaboration is the Best Medicine: Patient-Centered Collaboration Grounded in Caritas®December 16, 2025
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