by Richard G Kahn | Jul 29, 2021
Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post,...
by Eric Bersh | Jul 22, 2021
Conversations between SPM co-founder and Chief Advocacy Officer, Danny Sands MD and Annie Brewster MD, founder of the Health Story Collaborative. Here they discuss what it means being a doctor and having to say “I don’t know” to a patient. Did you enjoy this video?...
by Mohammed Mallouh | Jul 14, 2021
In 2013 the Institute of Medicine published a landmark 436 page consensus report, Best Care at Lower Cost: The Path to Continuously Learning Health Care in America. Its summary contains the characteristics of a continuously learning system: Note that the second...
by Christophe Jauquet | Jul 3, 2021
For the past 20 years, I’ve been involved in designing diverse health experiences: from diagnostic to adherence tools, from software for cytostatic preparation, to integrated mobile health solutions. During these projects, I cannot say that the patient was never...
by John M. Grohol, Psy.D. | Jul 2, 2021
The HIMSS21 Global Health Conference & Exhibition brings you the world-class education, cutting-edge products and solutions, and unique networking opportunities you need to solve your biggest health information and technology challenges — all at one time,...
by Lygeia Ricciardi | Jun 28, 2021
When my daughter Ada was an infant, a cardiologist told me that she needed open heart surgery, the sooner the better. Ada had been born with a small hole in her heart (a VSD), which, the doctor said, could stunt her growth and potentially cause heart failure or brain...
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