by Nick Dawson | Feb 9, 2015
One of our Society’s best kept secrets is the composition of our membership. And lately, some of my best collaborations are coming out of conversations with fellow members. Last week, as I frenetically packed for a trip, I was chatting on the phone with our own...
by e-Patient Dave | Feb 2, 2015
LADIES AND GENTS, YOUR ATTENTION PLEASE. The famous @HurtBlogger, chronic pain patient Britt Johnson, has announced that she will LIVE TWEET 48 hours of “her chronic life,” MONDAY AND TUESDAY, Feb. 2-3. She has no idea what will happen – might be...
by e-Patient Dave | Jan 27, 2015
There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich’s Diabetes Mine blog (and its community) was acquired several years ago....
by Casey Quinlan | Jan 14, 2015
The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year’s event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington...
by Nancy Finn | Dec 22, 2014
MHealth Over 90% of the world’s population has some type of mobile phone, according to reports from the ITU (International Telecommunications Union and PEW research. mHealth will continue to be a major factor in technology and health in 2015, with new apps that...
by Casey Quinlan | Dec 16, 2014
In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by...
by Nick Dawson | Dec 15, 2014
A physician friend once shared his belief that the main product of a physician’s productivity is the diagnosis. Setting aside feelings about the notion of a work product in medicine, I’ve quite liked the simplicity of his distillation. The diagnosis is the...
by Casey Quinlan | Dec 12, 2014
This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We’re re-posting it here to both put it on the membership’s radar, and to invite comments on Michael’s POV that “As much as we can argue that...
by Nancy Finn | Dec 11, 2014
Rapid advances in the technologies giving scientists the ability to analyze, understand and identify the unique characteristics in the genome of every human being are now being translated into clinical applications that are actually prolonging the life of many...
by Nancy Finn | Nov 13, 2014
The Commission on the Status of Women (CSW) was established by the United Nations Economic and Social Council (ECOSOC) in 1946. It is the principal global policy-making body dedicated exclusively to gender equality and advancement of women. The active...
by Ileana Balcu | Nov 4, 2014
Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn’s and Colitis Foundation of America’s Fredericksburg, VA support group for the past 6 years. Crohn’s disease and ulcerative colitis are two forms of...
by Nancy Finn | Oct 27, 2014
By Nancy B. Finn There has been so much discussion online and in the press about electronic health records and physicians sharing EHR data with patients via such tools as OpenNotes and Blue Button, that the personal health record (PHR) has been lost in the dialogue....
by e-Patient Dave | Sep 16, 2014
Today in our Society’s journal, SPM co-founders Joe and Terry Graedon of PeoplesPharmacy.com posted something I couldn’t agree with more: e-Patients Never Retire That’s kinda by definition, eh? But there’s an uppity Sixties edge to this, and...
by e-Patient Dave | Sep 10, 2014
Students of medicine (surely most MDs) will know the name Larry Weed, but I didn’t until a few years ago on this blog, when I learned that in 1999 our founder “Doc Tom” Ferguson gave Weed an Outstanding Achievement Award. In the late 1960s Dr. Weed...
by e-Patient Dave | Aug 9, 2014
This article was part of the big Health Affairs issue “New Era of Patient Engagement” (Feb 2013) which Ileana Balcu blogged about at the time. I’ve long been a fan of the Patient Activation Measure, which IÂ wrote about here three years ago in The...
by e-Patient Dave | Jul 18, 2014
I know many of our readers already saw this, but, from her personal blog: In one way, I’m sad to see that her work at Pew is over. In her 14 years there, time after time her work made clear what was actually happening as people use the internet in pursuing...
by Marge Benham-Hutchins | Jun 17, 2014
Written in collaboration with Linda Trietler, MSN, RN – PhD student. Review of Kalisch, B. J. (1975). Of half-gods and mortals: Aesculapian authority. Nursing Outlook, 23(1), 22-28. As we work to develop a collaborative and patient centered health care system...
by Ileana Balcu | Jun 9, 2014
An article published yesterday in Wall Street Journal The Health-Care Industry Is Pushing Patients to Help Themselves –Â Providers are Using Tech Tools and Personalized Approaches to Get Patients More Engaged...
by e-Patient Dave | Jun 4, 2014
A press release published Tuesday begins: Sharecare and Blue Button Host Twitter Chat to Help Consumers Take Control of Their Personal Health Information Gaining control of your health and your personal health information is more than just a convenience – it’s your...
by Nancy Finn | Mar 23, 2014
Approximately 98 % of the world’s population are now owners of cellphones, including many adults in remote, hard to reach locations. This proliferation of mobile devices has the potential to improve our ability to diagnose and track disease; to tackle and...
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