by e-Patient Dave | Jan 20, 2012
We often say here “Gimme my damn data,” referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, “Nothing about me without me.” And where, we might ask, is that more vital...
by e-Patient Dave | Jan 18, 2012
My annual physical is this Friday. Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time: 1/17/2012 10:00:06 AM Read Date/Time: 1/18/2012 7:19:08 AM From: OpenNotes, Study...
by e-Patient Dave | Jan 10, 2012
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
by e-Patient Dave | Jan 3, 2012
Followers of our “gimme my data” series will get a rough-edged refresher about current reality by the well-written and raw story of @WilliamDale_MD’s Sunday post Medical Health Record: A Personal Journey Down the Rabbit Hole. A great narrative by a...
by Kathleen O'Malley | Dec 27, 2011
Why does this blog use the word “damn” so often? A search produces a whopping 38 hits, such as: Fools! Damn fools! And Medical Science (Right, Santa??) Atlantic: Lies, Damned Lies, and Medical Science “Gimme my damn data!” The stage is being set to enable...
by e-Patient Dave | Dec 22, 2011
Update 6:33pm ET: the Storify feed wasn’t working. Should be fixed now. What a rocket ride it’s been for Xeni. Tuesday morning we reported on the BoingBoing co-editor’s unexpected breast cancer diagnosis 12/9, and her odyssey reading her scan data....
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