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Breaking News at Hematology Meeting – for Patients

Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and...

The Two Toms

Our dear friend, our brother, our hero, the inimitable Doc Tom, died on Good Friday 2006. Even though his untimely death came as a shock, Tom Ferguson had already far outlived the projections at the time of his Myeloma diagnosis over 15 years before. July 8 is Tom’s...

Information Therapy Conference

The Information Therapy conference just ended yesterday and my head is buzzing with a few favorite moments: 1) Josh Seidman’s speech connecting our venue, the Newseum, to his mission by talking about the history of the U.S. press, mail system, and medicine: the...

Randy Pausch, empowered patient / participatory medicine

Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...

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