by e-Patient Dave | Jun 14, 2012
Yesterday, in an email to our Society’s membership, Regina Holliday announced an amazing event that will happen as summer ends. It arose out of an episode with the “Partnership For Patients” program, whose title many of us felt revealed a...
by e-Patient Dave | Feb 12, 2012
It’s funny how things turn out sometimes. Lately I’ve written a lot here about e-patients taking an active role at a new level in healthcare, not just engaging in their care, but actually defining what it should be. Well, wouldn’t you know it, life...
by Kathleen O'Malley | Feb 8, 2012
Guest blogger Helen Palmquist is a member of the Ovarian Cancer National Alliance support community, hosted by Inspire. She lives in suburban Chicago. I was diagnosed with ovarian cancer at age 41, in the pre-Web days of 1987. From my hospital bed after my first...
by Kathleen O'Malley | Jan 9, 2012
In the latest post in our Why I Joined SPM series, guest blogger Ileana Balcu shares her story of pain, searching, and finally healing, once she discovered the e-patient community. Follow her on Twitter at @yogileana. It was 2002 and I was happily pregnant. I thought...
by e-Patient Dave | Dec 31, 2011
It’s fitting that our last post of the year should be about a patient community … winning an award! ACOR’s “KIDNEY-ONC” kidney cancer patient community was recently honored with the “Maily” Listserv Choice award in this, the...
by e-Patient Dave | Nov 10, 2011
To read this post in English, click here. HacÃa tiempo que tenÃamos en mente la posibilidad de llevar a cabo la traducción del Libro Blanco de los e-Pacientes al Español, ya que con más de 420 millones de hispanoparlantes en todo el planeta, nuestro idioma es ya la...
by e-Patient Dave | Nov 10, 2011
It’s been a  long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish,...
by Kathleen O'Malley | Sep 21, 2011
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online...
by e-Patient Dave | Sep 17, 2011
Another post from the Inspire.com network of patient commuÂniÂties. This one’s from New Hampshire resident Linnea Duff, an active Inspire participant who has Stage IV NSCLC (non-small-cell lung cancer). She blogs at Life And Breath. It’s often been said...
by Kathleen O'Malley | Sep 12, 2011
Guest blogger Tami Boehmer shares a recent conversation with e-Patient Dave about the pitfalls of survival statistics and the power of hope. Tami’s blog, “From Incurable to Incredible,” is at www.miraclesurvivors.com. I recently had the honor of...
by Susannah Fox | Sep 8, 2011
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a...
by Susannah Fox | Jul 6, 2011
Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live...
by Susannah Fox | Jun 27, 2011
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples,...
by Susannah Fox | Apr 4, 2011
To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs”). I read up on the facts and try to...
by Susannah Fox | Mar 10, 2011
It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare. The White House Office of...
by e-Patient Dave | Mar 4, 2011
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an...
by Susannah Fox | Feb 25, 2011
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising...
by Susannah Fox | Dec 13, 2010
Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The...
by Susannah Fox | Nov 22, 2010
I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it?...
by Susannah Fox | Nov 1, 2010
I was honored to be invited to TEDMED by the Pioneer Portfolio of the Robert Wood Johnson Foundation. Their team encouraged all attendees to complete one of three sentences: “To improve health and health care, we need to start asking…” “To...
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