by Ileana Balcu | Apr 2, 2014 |
Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s...
by Susannah Fox | Feb 28, 2014 |
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
by Ileana Balcu | Jan 14, 2014 |
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
by Casey Quinlan | Nov 22, 2013 |
Regina Holliday and her Walking Gallery project are featured in a new short film. Here it is: The Walking Gallery of Healthcare from Eidolon Films on Vimeo. How a movement...
by Casey Quinlan | Nov 18, 2013 |
In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in...
by Ileana Balcu | Nov 13, 2013 |
Below is a guest post by Suzanne Mintz, founder Family Caregiver Advocacy about a summit where patients and caregivers were an integral part of the healthcare redesign process. More and more you will see us featuring meetings and conferences that include patients and...
by Ileana Balcu | Oct 10, 2013 |
We’re organizing a tweetchat this Saturday – October 12 at 3 PM ET to welcome MedX partcipants into the Society for Participatory Medicine. We will discuss our communications tools, and other topics of interset to our members: e-patients, health care...
by Ileana Balcu | Sep 11, 2013 |
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by Alicia Staley | Aug 25, 2013 |
SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...
by Susannah Fox | Jul 19, 2013 |
Susannah: On June 14, 2013, I attended the National Meeting on Promoting and Sustaining Collaborative Networks in Pediatrics where we discussed topics covered in a special issue of Pediatrics, among other initiatives and trends. Justin Vandergrift was one of the...
Experts at Meeting in Quebec Ask “Who Chooses How Much of What?”August 18, 2017
WikiProject Medicine three years on: “converting clinicians to active digital contributors”August 7, 2017
WikiProject Medicine: med students join in producing high quality Wikipedia articles. (You can, too.)August 3, 2017
Lived Experience + Expertise = ValueJuly 22, 2017
#BMJDebate tweetchat: “terms of engagement” for patient voices, noon Thursday ETJuly 12, 2017
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