by Carly Flumer | Sep 13, 2021 |
I didn’t want to tell anyone about my diagnosis. I thought my family and a few close friends were enough. But I got brave one day four years ago and posted about it on social media. The outpouring of support was incredible. I thought, if I’m receiving this much...
by Tamika Felder | Jun 16, 2021 |
Stories have the power to punch you in the gut. Of course I mean figuratively, but in many real ways, literally too. I literally feel pain–coupled with inspiration–when fellow cancer survivors share their experiences, struggles and fears. Stories have the...
by Sarah Krüg | Mar 12, 2019 |
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...
by e-Patient Dave | Oct 9, 2018 |
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
by e-Patient Dave | Jul 15, 2018 |
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...
by Danny van Leeuwen | May 27, 2018 |
Thanks to support from SPM Travel Fund I attended Regina Holliday’s Cinderblocks Conference in Grantsville, MD. Still pound-for-pound the best conference going. Several days of local and national presentations about health, public health, and advocacy. Small,...
by e-Patient Dave | Apr 12, 2018 |
As a social movement works its way through a culture, sometimes we discover surprising disconnects or parallels. Dr. Danny Sands and I were recently interviewed for the Psych Central podcast, and in the process, host Gabe Howard said something exactly like that....
by Ileana Balcu | Aug 1, 2016 |
This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey...
by Ileana Balcu | Jul 30, 2016 |
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient...
by e-Patient Dave | Mar 30, 2016 |
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the...
Trust and Respect between Doctor and Patient are Critical to the Healing ProcessSeptember 21, 2021
There’s More to Participatory Medicine than Doctors and PatientsSeptember 7, 2021
Video Series: Doctor to Doctor – Meeting Patients Where They AreAugust 30, 2021
The Manifesto is a Helpful Framework for Finding Healthcare in the LGBTQ+ CommunityAugust 23, 2021
Recent Comments