by e-Patient Dave | Apr 12, 2018 |
As a social movement works its way through a culture, sometimes we discover surprising disconnects or parallels. Dr. Danny Sands and I were recently interviewed for the Psych Central podcast, and in the process, host Gabe Howard said something exactly like that.... by Ileana Balcu | Aug 1, 2016 |
This is a guest blog post by Cleo Kordomenos. Cleo was my student in the New Media and Health Communication class I taught at TCNJ. More about the class is shared in this post. Cleo Kordomenos is a Senior Communication Studies student at The College of New Jersey... by Ileana Balcu | Jul 30, 2016 |
In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient... by e-Patient Dave | Mar 30, 2016 |
Somehow I’d never heard of National Doctors’ Day, but apparently it started 25 years ago, in 1991. As one of many SPM members whose life was saved (or is being helped) by excellent physicians, I’m in! And I want to shine a broader spotlight on the... by Ileana Balcu | Sep 8, 2015 |
To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of... by Ileana Balcu | May 11, 2015 |
This blog welcomes guest posts from SPM members on relevant topics. This is a blog post by Annette McKinnon, an e-patient in Canada. Annette is an enthusiastic advocate for patient inclusion in research and healthcare decision making. She has had rheumatoid... by e-Patient Dave | Feb 11, 2015 |
This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal)... by Ileana Balcu | Nov 4, 2014 |
Society for Participatory Medicine member Carly Medosch and her mother Mary Jo have run the Crohn’s and Colitis Foundation of America’s Fredericksburg, VA support group for the past 6 years. Crohn’s disease and ulcerative colitis are two forms of... by e-Patient Dave | Sep 16, 2014 |
On my own site I have a (loose, rough, poorly managed) list of patient communities, gathered ad hoc, as time allows. Today I posted a new contribution of a different sort – the experiences of a prostate cancer patient I met at a speaking event last week in... by Susannah Fox | Jul 23, 2014 |
At 9am on Sunday, Sept. 7, 2014, Stanford Medicine X will host a discussion led by Pamela Ressler, Colleen Young, Meredith Gould and me about the power and pitfalls of people sharing their health experiences online. We are “flipping” the panel by sharing...
Join SPM’s workshop May 16 at “What’s The Fix?” at Dell Medical School. Free registration!April 18, 2018
Support @HealthHats Danny van Leeuwen’s nomination for PCORI Board of GovernorsApril 13, 2018
Psych Central podcast: “We often feel very isolated, but we have a lot more in common than we realize.”April 12, 2018
Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!April 2, 2018
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