Patient Networks Archives

Active Surveillance 101: A New Resource Driven by Patients and Crafted With Physicians

by Eric Bersh | Sep 19, 2022

Active surveillance (AS) for low-risk to intermediate-risk prostate cancer has been “an overnight success” that took 30 years to move from academia to mainstream practices. Since 2014, AS — close monitoring of low-risk prostate cancer with PSA blood testing,...

Following in the Footsteps of Others to become an Empowered Patient Advocate

by Carly Flumer | Sep 13, 2021

I didn’t want to tell anyone about my diagnosis. I thought my family and a few close friends were enough. But I got brave one day four years ago and posted about it on social media. The outpouring of support was incredible. I thought, if I’m receiving this much...

Manifesto Made Real: Sharing My Story Helps Others Share Theirs

by Tamika Felder | Jun 16, 2021

Stories have the power to punch you in the gut. Of course I mean figuratively, but in many real ways, literally too. I literally feel pain–coupled with inspiration–when fellow cancer survivors share their experiences, struggles and fears. Stories have the...

Got Candles? Happy 30th Birthday to the World Wide Web!

by Sarah Krüg | Mar 12, 2019

“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...

Dr. Patti Brennan – #SPM2018 speaker preview “Supporting the Care Between the Care: The Role of the National Library of Medicine”

by e-Patient Dave | Oct 9, 2018

[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....

Facebook patient privacy issue – important #BCSM Twitter chat TONIGHT, July 16 9pm ET

by e-Patient Dave | Jul 15, 2018

TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...