Articles on patient networks


NON-Practicing Patients

It took me a few days to digest what was troubling me with the New York Times Magazine article. The efficacy of the ACOR groups is based in part on the dual fact that patients and caregivers members of the online communities NEVER behave like they are replacing their...

Friends, Family & Post-surgical Outcomes

An article in this week’s Journal of the American College of Surgeons shows that “patients with larger social networks showed better outcomes than patients with small or nonexistent social networks.” Here is the abstract (note: the first time I...

More 2.0 Definitions

Susannah once again posted a series of cool/very useful links! And I know we should keep on providing definitions for all the “Health 2.0” applications we are talking about. So, out of pure laziness and because the LeFevers brothers have already done the...

Rate a Doctor?

For years Doc Tom urged us to facilitate patients’ publicly rating doctors as a way to accelerate e-pateints movement. Alan (DrGreene) was excited about this, even though he was a physician, but I was afraid it would open Pandora’s box. In the winter of...

E-patients With Chronic Conditions

Sometimes my research becomes a little too much for me to bear alone. Like when I find that people living with chronic disease and disability are among the least likely to have access to the internet, but who, once online, are among the most avid e-patients. Or when I...

International e-Patients

The internet breaks completely all geographical barriers. This is particularly important for those suffering from a rare condition and who do not have direct access to the few major cancer centers with in-house specialists for that condition. We have a developing...

Online Patient Groups

Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right...

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