Search all of the Society for Participatory Medicine website:Search

Keeping Patients in the Dark: SIIPC14

  Several SPM members were in attendance at the recent SIIPC14 conference at Dartmouth, where the ongoing work on healthcare system transformation  has been the source of much great content on e-patients.net over the years. Casey Quinlan – yes, yours truly...

Times science reporter asks: “Ever hit a paywall?”

Thanks to Twitter friend @CourageSings for this tip. I retweeted it, but I know a lot of readers of this blog will answer “yes” and might not see the tweet: Ever hit a paywall trying to access a scientific paper? For a story, would love examples from...

OpenNotes & Transparency: Ongoing conversation

OpenNotesOne of our MD members, Peter Elias, tipped us off on our listserv to a post on KevinMD.com from a clinician who was expressing concern about the wisdom of OpenNotes, and fully sharing information with patients in general. Peter posted a comment, which we...

The Iceberg Waiting for Your Health Care Data

The Heartbleed web security exploit was first publicized several weeks ago. In the time since then, numerous web-based services have let their users know (some more clearly than others) whether and how their data security was compromised by this OpenSSL flaw that has...

Health Information Exchange: We’re not there yet

This post was originally a comment by SPM member Jeffrey Harris on our C-ME post from April 3, 2014. Jeffrey has a long history as a clinician, a health IT strategist, and as a patient. We thought his commentary deserved its own post. I had the opportunity to moderate...

It’s time to C-ME (see me): Consumer Mediated Exchange

By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS  Connected Patient Committee and co-chair of the Connected Patient Community.  Mr. Branning has spent 33 years...

Erin Moore: “Your message did not fall on deaf ears.”

Last week SPM member Erin Moore (see her previous posts) handled an opportunity in Washington really effectively, and she got heard. Here’s a cross-post of her news, with permission, from her blog 66 Roses. ______________ Last week I traveled to Washington, DC...

What’s the PATIENT value in health IT?

Since HIMSS14, there’s been a robust discussion on the SPM listserv about the “business of IT” in healthcare. There were a number of our number present in Orlando for the HIMSS conference, with some of them appearing on the platform. The conversation...

“Health cometh not from healthcare”

We often say here that clinicians should welcome activated patients. Hand in glove with that, we must also say: Yo, patients: get activated! Know what works, and act on it! Huzzah to Swedish SPM member and Parkinson’s patient Sara Riggare for this, on Facebook,...

Patients-included Pharma? Disingenuous, and busted.

Prolog by e-Patient Dave: “Patients Included” was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes – as in this...

Donate