by Ileana Balcu | Dec 3, 2013
Radiation oncologist Matthew Katz is a lifetime member of SPM who blogs regularly for the American Society of Clinical Oncology and Mayo Clinic Social Media Health Network. In this guest post he offers his view of 23andMe, the personal genomics service that’s in...
by e-Patient Dave | Nov 24, 2013
Update Nov. 26: great news! In today’s NY Times is Gynecologists May Treat Men, Board Says in Switch! Their reason for the change is still totally doctor-centric – even the mention of patients is about “the doctor-patient relationship,” not...
by Casey Quinlan | Nov 18, 2013
In 1517, Martin Luther nailed his “Ninety-Five Theses” to the wooden doors of Wittenberg Cathedral, sparking a global reformation of the Christian faith that’s still going on today. In the 1950s and 1960s Dr. Martin Luther King Jr. worked to drive inclusion for all in...
by David Harlow | Oct 14, 2013
Meaningful Use Stage 2 includes the requirement that health care providers with EHRs seeking Meaningful Use incentive dollars demonstrate that 5% of patients actually view, download or transmit their data. The HIPAA/HITECH Omnibus Rule, which is now fully in effect...
by David Harlow | Sep 23, 2013
[Note added by e-Patient Dave: this is such a big deal that I’m taking the rude step of adding highlights [bold] to Attorney Harlow’s post!] We’re inching closer to promulgation of final regulations that will likely make all lab test results more...
by e-Patient Dave | Sep 15, 2013
Monday Sept. 16 is the 2013 Consumer Health IT Summit. That means we, the patients, are the focus – we and our data, of course! – along with the providers (doctors, nurses, practices, hospitals) who serve us. You can watch live, online, without prior...
by Ileana Balcu | Sep 13, 2013
Guest blogger Natasha Gajewski participated in the Flip the Clinic meeting at the Robert Wood Johnson Foundation. Below are her observations about the meeting and a thought you might consider. Natasha is an e-Patient and the developer of Symple, a symptom journal for...
by Ileana Balcu | Sep 11, 2013
SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...
by e-Patient Dave | Sep 6, 2013
Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...
by e-Patient Dave | Sep 4, 2013
Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...
by John M. Grohol, Psy.D. | Aug 27, 2013
A few months ago, I complained about the layout of one of my doctor’s offices. There’s a rough layout drawing of the office waiting area to the side there. I’m standing just in front of the number 1, while people are sitting along the wall behind me....
by e-Patient Dave | Jun 17, 2013
Last year during TEDMED 2012, in “The cancer at the core of evidence-based medicine”: Ben Goldacre on the missing data, we covered the vitally important news that a lot of medical research has gone missing, leading to a severely corrupted foundation for evidence-based...
by David Harlow | Jun 5, 2013
ONC is sponsoring the Blue Button Plus Challenge — putting up some prize money to incentivize teams of developers to come up with solutions to the problem of getting patient data to patients. The first phase of the challenge is crowdsourcing ideas from patients...
by David Harlow | May 20, 2013
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must...
by David Harlow | Apr 24, 2013
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a...
by Susannah Fox | Apr 8, 2013
New analysis of the Pew Research Center’s 2010 health survey results show differences among three populations: veterans of the U.S. military who obtain their health care within the Veterans Health Administration of the U.S. Department of Veterans Affairs (VA);...
by Kathleen O'Malley | Apr 5, 2013
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the...
by Ileana Balcu | Mar 28, 2013
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer...
by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by Nancy Finn | Feb 11, 2013
According to a recent Harris Poll, walk-in medical clinics located in pharmacies, shopping malls, office parks and workplaces are getting more and more popular with health care consumers. The poll reported that of the 3,000 adults surveyed online, 27% said they have...
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