by e-Patient Dave | Feb 6, 2013
Major typo fix, 3:23pm – “they’re giving” is not same as “they’re given”! Sorry. This note arrived today from the Institute of Medicine. I’m in DC at the moment, at a big briefing by the Health Affairs policy journal...
by e-Patient Dave | Feb 2, 2013
Guest post by SPM member @NickDawson, a former health system executive now focused on patient experience, staff happiness and healthcare innovation. He works for Frontier Health in Richmond, Virginia. There’s a moment where something changes direction,...
by David Harlow | Feb 1, 2013
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other...
by e-Patient Dave | Jan 17, 2013
On Twitter @HCI_GPerna just posted that the Dept of Health & Human Services has announced the long-awaited rule changes to HIPAA, the Health Insurance Portability and Accountability Act of 1996. These are the changes to implement HITECH, the 2009 stimulus bill...
by David Harlow | Jan 14, 2013
The Health IT Policy Committee of the Office of the National Coordinator of Health IT released its proposed Stage 3 objectives for Meaningful Use. Â “Eligible Providers” that meet these objectives share in the federal electronic health record incentive...
by e-Patient Dave | Jan 2, 2013
Jan. 3 update: See important update at bottom – the site owner has identified himself. I’m extremely troubled by this development, so much so I’m stopping a tight-deadline task to write this. Let’s hope that as things unfold this will resolve....
by e-Patient Dave | Dec 30, 2012
SPM member Danny van Leeuwen @HealthcareHatsis an active member of PCORI’s patient engagement workgroup. A month ago he mentioned a post about PCORI on WBUR’s CommonHealth blog, Medical Research: By Law, It’s All About You. I said “You should make...
by e-Patient Dave | Dec 29, 2012
Merle Bushkin of MedKaz (a secure PHR device) is extremely unhappy with the reality that although we’ve spent years and billions on EMR adoption, the practice of healthcare hasn’t transformed yet. In “Where’s the urgency, the anger, the...
by Susannah Fox | Dec 28, 2012
I was curious to see which were the top 5 posts, traffic-wise, and figured readers might be interested, too. Here’s the line-up: #1: Open knowledge saves lives. Oppose H.R. 3699! by Gilles Frydman The e-patients.net post with the highest number of views is a...
by David Harlow | Dec 17, 2012
A recent Press Ganey white paper highlights an association between HCAHPS performance — patient experience scores — and lower rates of readmission. (Performance Insights – The Relationship Between HCAHPS Performance and Readmission Penalties.) With...
by e-Patient Dave | Dec 16, 2012
I haven’t blogged about it much this year due to the pressures of my own work, but I’m seriously impressed with the relevance, quality and user-friendliness of the work being done by the folks at ONC (the health IT branch of the department of Health &...
by Michael Millenson | Dec 11, 2012
The new Patient-Centered Outcomes Research Institute (PCORI) has been asking different stakeholders about the most important issues to address with the hundreds of millions of dollars the quasi-governmental group will shortly be doling out in grants. Not surprisingly,...
by David Harlow | Nov 30, 2012
The latest news story to examine the issue of patient access to implantable cardiac defibrillator data (a variation on the theme of “gimme my damn data”) is an in-depth, Page One Wall Street Journal story featuring Society for Participatory Medicine...
by e-Patient Dave | Nov 28, 2012
The PDF at right is a summary of sample data from this new dataset. The Leapfrog Group is a highly respected patient safety organization. They’ve earned a reputation for carefully and thoughtfully assessing providers’ actual performance in quality and...
by Susannah Fox | Nov 21, 2012
David Gorn, a reporter for California Healthline, contacted me after the release of the Pew Internet/California HealthCare Foundation’s Mobile Health 2012 report and asked if there were interesting findings on rural Americans. Indeed there are and I wish...
by e-Patient Dave | Nov 6, 2012
Oh lordy, do I love this U.S. Election Day tidbit. Translate all the ideas from men/women to doctor/patient, and you’ll have the response I sometimes get when I lecture about participatory medicine. Thanks to one of SPM’s newer members, Cristin Croghan...
by e-Patient Dave | Nov 1, 2012
Next in our series of posts by SPM members on their experience at last weekend’s PCORI workshop. See Monday’s introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He’s a sensitive, caring...
by e-Patient Dave | Oct 31, 2012
Second in a series announced yesterday of posts by SPM members who attended last weekend’s PCORI workshop. This one’s from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure...
by e-Patient Dave | Oct 30, 2012
As noted in today’s earlier post, we’re starting a series of posts by SPM members who participated in last weekend’s PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I’ve ever seen anywhere. Aside from her technical...
by e-Patient Dave | Oct 30, 2012
All: I’d like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you’ll get. __________________Â This post started...
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