by e-Patient Dave | Jul 15, 2018
TONIGHT: 9 pm Eastern time. #BCSM Twitter chat on the latest Facebook privacy issue. This time the data leaked is from a patient group. FB says it’s a nothingburger. What do you think? Facebook has a record of privacy leaks. The poster shown here (click to...
by Michael Millenson | Jun 27, 2018
This is the second of two posts about this important policy issue regarding portability of our medical records. The first provided background, with link to a PDF of the comments SPM submitted, largely authored by Michael Millenson, who provides this essay for context....
by e-Patient Dave | Jun 27, 2018
This is the first of two posts about this important policy issue regarding portability of our medical records. The second is by Michael Millenson, who did the lion’s share of this work, as noted below. Our Society’s Advocacy and Policy chair Vera Rulon...
by e-Patient Dave | Jun 19, 2018
I know there are numerous initiatives along these lines so please circulate this widely. Help publicize and share what others are doing to incorporate patient perspectives in the present and future of healthcare! I’ve received the following request from Luke...
by e-Patient Dave | Jun 5, 2018
Great update 20 months later: UCSF Hospital announced Jan 10, 2020 that they’ve made radiology images available through their MyChart portal, and Dr. Mark Kohli tweeted that it’s due to the speech that resulted from this blog post!  Here’s their...
by Danny van Leeuwen | May 6, 2018
As you may know from previous posts, I sit as a patient/caregiver stakeholder on a Center for Medicare and Medicaid Services (CMS) technical expert panel (TEP) about Quality Measurement Development: Supporting Efficiency and Innovation in the Process of Developing CMS...
Exciting 15th Anniversary Project and Opportunity for Member EngagementAugust 7, 2024
Leveraging Personalized Technology to Motivate Behavior ChangeMay 6, 2024
Technology, Health Equity, and Participatory Medicine in the Care Management of Sickle Cell PatientsApril 26, 2024
Driving Transformation: Change Management Strategies for Integrating Participatory Medicine in HealthcareApril 6, 2024
The Challenge for Medicare Part D Patients: Inability to Utilize Pharmaceutical Programs to Reduce Medication CostsMarch 29, 2024
Recent Comments