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Flip the Flip

by Ileana Balcu | Sep 13, 2013

Guest blogger Natasha Gajewski participated in the Flip the Clinic meeting at the Robert Wood Johnson Foundation. Below are her observations about the meeting and a thought you might consider. Natasha is an e-Patient and the developer of Symple, a symptom journal for...

New #S4PM tweetchat series kicks off Saturday 9/14 at 3pm Eastern

by Ileana Balcu | Sep 11, 2013

SPM is launching a tweetchat series this Saturday, Sept. 14 at 3pm Eastern, 7pm GMT (use The World Clock [link: http://www.timeanddate.com/worldclock/converter.html] to find your time zone). The chat will be led by Casey Quinlan, @MightyCasey; Ileana Balcu,...

Beth Israel Deaconess FAQ for their patients reading OpenNotes

by e-Patient Dave | Sep 6, 2013

Clarification 9/7: The FAQ posted below is of course authored by my hospital, not by me. Several people misunderstood so I edited this and the headline. On Wednesday I posted about the roll-out of OpenNotes to over a million patients and families. That post arose when...

The OpenNotes project goes wide: a million patients and families enabled by information!

by e-Patient Dave | Sep 4, 2013

Updated Sept. 6: I’d forgotten that as we posted in June, Cleveland Clinic announced open access too, adding a half million patients to the total. Big news is emerging from the OpenNotes® project: big institutions are making patient access to the medical record...

Erin Moore’s speech: What if CF had a Collaborative Care Network?

by Alicia Staley | Aug 25, 2013

SPM member Erin Moore (@EKeeleyMoore) is one heck of an activist parent. She sees the future, she has a stake in it – a kid with a chronic disease – and like many of us, she’s not waiting around for someone else to make it happen: she’s engaged...

Resources for health literacy

by Ileana Balcu | Aug 16, 2013

Guest blogger Kathy Kastner gives us an overview of the health literacy resources on the Internet. It is an important topic – how can patients be engaged and participatory if they don’t understand what they are told? Kathy Kastner is Blogger and Curator...