by Eric Bersh | Aug 23, 2022
Being born with cystic fibrosis, a progressive, genetic lung disease, I have had countless health encounters throughout my life. Through these experiences I have learned the power that lies in self advocating for my health in the clinic setting with my doctors and...
by Danny van Leeuwen | Jun 13, 2022
Patients, care partners & clinicians can reduce record errors with collaborative notes. Dr. Peter Elias shares his note-writing with collaborative partners. Proem Expecting an error-free medical record seems unreasonable – too many opportunities, too many forces,...
by Eric Bersh | Mar 16, 2022
My husband was on a tele-call as I walked past in the background quiet, as if a mouse. He got off his call and asked “So?” I exclaimed “It’s positive!” He could hardly believe it, I acted so calm. I had already intuitively had a sense—I was pregnant. We were ecstatic,...
by Eric Bersh | Mar 1, 2022
In 2004, at age 17, I was diagnosed with an adult-onset muscle disease called limb-girdle muscular dystrophy type 2B (LGMD2B). My diagnostic journey began 10 months prior, the result of a routine blood test after a car accident which yielded concerning biomarker...
by Salene MW Jones, PhD | Dec 20, 2021
When I was training to become a clinical psychologist, my supervisors gave me several pieces of great advice. One told me that the psychologist or therapist is the expert on mental health treatment and research but the patient or client is the expert on their own...
by Daniel Halpren-Ruder, MD | Oct 25, 2021
We Have Failed The Society for Participatory Medicine was founded in 2009 to transform the culture of care. A few years later, a comprehensive history of the forces that resulted in the creation of the Society was presented here by Millenson: Spock, feminists, and...
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Expert Advisory Boards: A New Model for Co-ExplorationJanuary 4, 2023
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Patient Design: The Importance of Including Patients in Designing Health CareNovember 30, 2022
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