by Eric Bersh | Mar 1, 2022
In 2004, at age 17, I was diagnosed with an adult-onset muscle disease called limb-girdle muscular dystrophy type 2B (LGMD2B). My diagnostic journey began 10 months prior, the result of a routine blood test after a car accident which yielded concerning biomarker...
by Salene MW Jones, PhD | Dec 20, 2021
When I was training to become a clinical psychologist, my supervisors gave me several pieces of great advice. One told me that the psychologist or therapist is the expert on mental health treatment and research but the patient or client is the expert on their own...
by Daniel Halpren-Ruder, MD | Oct 25, 2021
We Have Failed The Society for Participatory Medicine was founded in 2009 to transform the culture of care. A few years later, a comprehensive history of the forces that resulted in the creation of the Society was presented here by Millenson: Spock, feminists, and...
by Danny Sands, MD | May 14, 2021
The pressures of healthcare payment has forced physicians to move patients through the office as quickly as possible, and that is robbing us of high-value services that we can provide, particularly to educate and engage in shared decision making with our patients. I...
by e-Patient Dave | Mar 8, 2021
Time for change! The theme of our 2019 conference was #Time4Change. This post kicks off a major 2021 campaign for our Society: the Participatory Medicine Manifesto. At that event we took action: in a design-thinking exercise, attendees crowdsourced the ideas that have...
by e-Patient Dave | Feb 28, 2020
Now this is patient-centered care. This may be the most wonderful participatory innovation I’ve seen since OpenNotes in 2012. This one’s completely different: OpenNotes is about patient access to the medical record, but this one invites patients to see...
ChatGPT summarized my OpenNotes. Wow!September 26, 2023
A Surprising Collaboration Gives Trauma Patients a Second ChanceSeptember 25, 2023
Moments that Matter: in-between routine care to emergency medicineAugust 28, 2023
What My Second Lease on Life Taught Me about the Power of Human ConnectionAugust 17, 2023
Team Building In The Wake of the COVID-19 PandemicAugust 8, 2023
Recent Comments