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Storytelling: Where Compassion is Born

Storytelling: Where Compassion is Born

Editor’s note: In this excerpt from her latest book, Ducks in a Row, Canadian-based author, Sue Robins explains the power of storytelling for everybody invested in health care—patients and clinicians alike.  A well-told story, Robins explains, has the ability to...
Playing the Waiting Game While Living with a Rare Disease

Playing the Waiting Game While Living with a Rare Disease

In 2004, at age 17, I was diagnosed with an adult-onset muscle disease called limb-girdle muscular dystrophy type 2B (LGMD2B). My diagnostic journey began 10 months prior, the result of a routine blood test after a car accident which yielded concerning biomarker...
Linnea Olson: An Appreciation of a Giant

Linnea Olson: An Appreciation of a Giant

Pioneers of medical progress are lauded in published articles and by their professional peers. But it is often the patient advocates, particularly those who demanded better treatment, spearheaded clinical trial advances, and bravely took on institutions and standards...

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