shared decision making

Everyone-Included Research

by Danny van Leeuwen | Nov 9, 2020 | 0 comments

Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...

The process of shared decision-making: What it is, when it’s not, and what it should be

by e-Patient Dave | Mar 27, 2019 | 0 comments

This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...

Whither Cochrane, for e-patients and everyone else?

by Casey Quinlan | Oct 20, 2018 | 3 comments

This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...

Dr. Patti Brennan – #SPM2018 speaker preview “Supporting the Care Between the Care: The Role of the National Library of Medicine”

by e-Patient Dave | Oct 9, 2018 | 1 comment

[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....

Putting Patients at the Center of Pain Management Decisions

by Danny van Leeuwen | Oct 7, 2018 | 1 comment

Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS) technology can maximize trust and engagement during decision-making if used to its full potential. Or NOT. Consider the patient and family perspective...

#SPM2018 speaker @MightyCasey gets piped in at Cochrane in Edinburgh

by e-Patient Dave | Sep 17, 2018 | 0 comments

For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on...

Introducing the Patient-Centered Clinical Decision Support-Learning Network

by Danny van Leeuwen | Mar 28, 2018

Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise...

Participatory Medicine in Pinstripes: What Baseball Can Teach Doctors

by Michael Millenson | Nov 15, 2017 | 0 comments

Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...

e-Patient perspective on evolocumab (that new cholesterol study): beyond the headlines

by e-Patient Dave | Mar 20, 2017 | 14 comments

Please cite this post as “by Dave deBronkart, Marilyn Mann and Peter Elias MD” or, on Twitter, “@ePatientDave, @MarilynMann & @PHEski.” Our blog software only allows listing one author but they provided 2/3 of the content. The medical news...

Just Say “No” to Medicare’s MACRA Tokenism

by Michael Millenson | Jun 3, 2016 | 2 comments

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an...

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