by Eric Bersh | Mar 16, 2022 |
My husband was on a tele-call as I walked past in the background quiet, as if a mouse. He got off his call and asked “So?” I exclaimed “It’s positive!” He could hardly believe it, I acted so calm. I had already intuitively had a sense—I was pregnant. We were ecstatic,...
by Eric Bersh | Jan 11, 2022 |
As a leader in patient advocacy, I am often asked to speak on the topic of patient centricity and patient advocacy from the biotech/pharma perspective. What do we mean by patient centricity or when we say that patients are at the center of what we do or patients are...
by Salene MW Jones, PhD | Dec 20, 2021 |
When I was training to become a clinical psychologist, my supervisors gave me several pieces of great advice. One told me that the psychologist or therapist is the expert on mental health treatment and research but the patient or client is the expert on their own...
by Sean Erreger | Oct 4, 2021 |
Navigating youth and their families through what is often a complex mental health system is a job that is frustrating but also an honor. As a licensed social worker, my compass through the journey is guided by a group of core values. The National Association of...
by Amy Camie | Sep 21, 2021 |
Years before the first of my two breast cancer diagnoses, I shared live harp music in chemotherapy infusion units, spoke to support groups about the healing power of music, and developed a clinical trial exploring the effects of specific music on patients undergoing...
by Danny Sands, MD | May 14, 2021 |
The pressures of healthcare payment has forced physicians to move patients through the office as quickly as possible, and that is robbing us of high-value services that we can provide, particularly to educate and engage in shared decision making with our patients. I...
by Danny van Leeuwen | Nov 9, 2020 |
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by e-Patient Dave | Mar 27, 2019 |
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...
by Casey Quinlan | Oct 20, 2018 |
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...
by e-Patient Dave | Oct 9, 2018 |
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
Urgent – comment TODAY: stop this CMS rule change that suppresses hospital safety dataJune 17, 2022
Collaborative Notes, Engaged Partners, Fewer ErrorsJune 13, 2022
Creating Your Own Self-Advocacy StyleMay 5, 2022
Tell Me Your Story: How Narrative Medicine Fosters TrustApril 27, 2022
Simple Measures to Put Caring Back in Health CareApril 20, 2022
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