by Brenda Merriweather | Apr 26, 2024
During my doctoral study in nursing practice a couple of years ago, I learned about a champion of nursing informatics, Dr. Nancy Staggers. Dr. Staggers assisted in developing the American Nursing Association’s Scopes and Standards of Practice. She also contributed to...
by John Novack | Dec 6, 2022
Editor’s note: In his new book, Open Heart, Warrior Spirit: A Man’s Guide to Living With Cancer, patient activist Trevor Maxwell explains why men go into their “man caves” when facing a cancer diagnosis; provides tips for avoiding that dangerous isolation;...
by Eric Bersh | Sep 27, 2022
“Lack of effort and persistence” Those words cut like a knife, leaving a deeper wound than any facet of illness my daughter has faced. A provider used those words to describe my 19-year-old daughter Sara, who has lived her entire life with chronic complex medical...
by John Novack | Sep 12, 2022
Embracing shared decision making in medicine will improve patient outcomes, reduce costs, increase health equity, and even help alleviate clinician burnout, Danny Sands, MD, co-founder of the Society for Participatory Medicine, said in a recent podcast interview. Erin...
by Eric Bersh | Aug 23, 2022
Being born with cystic fibrosis, a progressive, genetic lung disease, I have had countless health encounters throughout my life. Through these experiences I have learned the power that lies in self advocating for my health in the clinic setting with my doctors and...
by Eric Bersh | Aug 17, 2022
Collaborations across healthcare can save lives – especially when working with patient advocates. For a person like me, who is impacted by a rare, neurological, and incurable disease, it’s my mission to ensure that patients’ perspectives are represented early...
by Eric Bersh | Mar 16, 2022
My husband was on a tele-call as I walked past in the background quiet, as if a mouse. He got off his call and asked “So?” I exclaimed “It’s positive!” He could hardly believe it, I acted so calm. I had already intuitively had a sense—I was pregnant. We were ecstatic,...
by Eric Bersh | Jan 11, 2022
As a leader in patient advocacy, I am often asked to speak on the topic of patient centricity and patient advocacy from the biotech/pharma perspective. What do we mean by patient centricity or when we say that patients are at the center of what we do or patients are...
by Salene MW Jones, PhD | Dec 20, 2021
When I was training to become a clinical psychologist, my supervisors gave me several pieces of great advice. One told me that the psychologist or therapist is the expert on mental health treatment and research but the patient or client is the expert on their own...
by Sean Erreger | Oct 4, 2021
Navigating youth and their families through what is often a complex mental health system is a job that is frustrating but also an honor. As a licensed social worker, my compass through the journey is guided by a group of core values. The National Association of...
by Amy Camie | Sep 21, 2021
Years before the first of my two breast cancer diagnoses, I shared live harp music in chemotherapy infusion units, spoke to support groups about the healing power of music, and developed a clinical trial exploring the effects of specific music on patients undergoing...
by Danny Sands, MD | May 14, 2021
The pressures of healthcare payment has forced physicians to move patients through the office as quickly as possible, and that is robbing us of high-value services that we can provide, particularly to educate and engage in shared decision making with our patients. I...
by Danny van Leeuwen | Nov 9, 2020
Person-included research, co-production, tragedy, grief, health equity, and relationships in life and research. Chat with Amy Price of Stanford and BMJ Proem Research follows life. Life comes before research. My diagnosis of Multiple Sclerosis preceded my need for...
by e-Patient Dave | Mar 27, 2019
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010’s Salzburg...
by Casey Quinlan | Oct 20, 2018
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...
by e-Patient Dave | Oct 9, 2018
[Update: this post has been picked up and cross-posted on the widely read The Health Care Blog] Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct....
by Danny van Leeuwen | Oct 7, 2018
Clinical decision support researchers, developers, and implementers this is for you. Clinical decision support (CDS) technology can maximize trust and engagement during decision-making if used to its full potential. Or NOT. Consider the patient and family perspective...
by e-Patient Dave | Sep 17, 2018
For updates, follow Casey’s tweets on the #CochraneForAll hashtag – tweets by her and tweets tagging her. Casey will be a speaker at #SPM2018 on Oct 17, in a session with Ivan Handler of the Insightamation blog – “Thoughts and provocations on...
by Danny van Leeuwen | Mar 28, 2018
Introduction SPM member, Danny van Leeuwen, Health Hats, introduces a new blog sponsored by the Patient-Centered Clinical Decision Support-Learning Network: Patient Expertise: Sharing and informing choices to connect research and clinical experience. Patient expertise...
by Michael Millenson | Nov 15, 2017
Baseball, like medicine, is deeply imbued with a sense of tradition, and no team more so than the New York Yankees, disdainful of innovations like placing players’ names on the backs of their jerseys and resistant to eroding strict standards related to haircuts and...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
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