by e-Patient Dave | Mar 8, 2009
I have a fairly geeky abstract question about one aspect of the e-patient world. It’s not pivotal for issues of empowerment, access to care, etc, but as my friends and I keep learning about participatory medicine, the topic of social networking keeps coming up....
by e-Patient Dave | Mar 4, 2009
At the Connected Health conference in Boston last year, where I spoke with my physician Danny Sands, I heard the visionary Clay Shirky speak. He gets it in spades about patient empowerment. In passing, he cited one of the most absurd ideas I’ve ever heard :–)...
by e-Patient Dave | Mar 1, 2009
Cross-posted from my own blog a week ago. I’ve decided to go ahead and put my data in Google Health and MicroSoft HealthVault. (Note: MicroSoft HealthVault is a different kind of thing from Google Health. About the only thing they have in common is that I...
by e-Patient Dave | Feb 21, 2009
At the 25th annual TEPR+ conference in Palm Springs on Feb. 2, Alan Greene (DrGreene.com) gave the opening address. It was inspiring – I wish we had a video of it. Too bad so many attendees opted to skip the keynotes and fly into town late! Like, did you guys think...
by e-Patient Dave | Feb 14, 2009
Cross-posted from my own blog, and then some E-patients, listen up. We have work to do, work we can do. For the past year I’ve been learning what I can about the American healthcare system. I started this not as an “injured” patient but as someone...
by Susannah Fox | Feb 13, 2009
Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share...
by e-Patient Dave | Jan 27, 2009
This reinforces my repeated assertion that healthcare is far, far behind ordinary enterprise in adoption of practices that work: “When computers replace paper, patient mortality rates drop 15% during hospitalization, among other metrics, according to a study of...
by e-Patient Dave | Jan 18, 2009
This topic isn’t directly in our wheelhouse here in the e-patient movement (“empowered, engaged, equipped and enabled”), but as I continue one patient’s odyssey in learning about healthcare, a discussion on Paul Levy’s blog has taught me...
by e-Patient Dave | Jan 15, 2009
E-patients, this is a call to action. Now. I want you to go express yourself on Paul Levy’s blog. Most readers of health policy blogs know what a costly, inefficient mess healthcare in America has become. Paul Levy would like the people in his business to work...
by e-Patient Dave | Jan 9, 2009
I don’t get surprised these days as easily as I used to before I got “e.” But something popped my eyes open last weekend, and I dug into it. It goes to the heart of where the power is, in the doctor-patient relationship. But not just the power – the...
by e-Patient Dave | Dec 31, 2008
I don’t know who Stanley Feld is, but he just became my friend, with a terrific post on doctor as coach, patient as player. It starts: The role of patients with chronic diseases and their physicians must be clear to both patients and physicians. Physicians are...
by John M. Grohol, Psy.D. | Dec 16, 2008
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web...
by e-Patient Dave | Dec 5, 2008
This guest post is an article written by Lisa Neal Gualtieri, published in her local paper. It’s an example of widening distribution of principles and practices documented in the e-patient white paper. I’m grateful to Lisa for sharing these true stories of...
by e-Patient Dave | Nov 29, 2008
Paul Grundy MD, of IBM, chair of PCPCC, is interviewed in the current Crain’s Benefits Outlook, a business publication about employee benefit programs. This quote alone is worth the price of admission: I can buy a damn good amputation for my diabetic, but what I...
by Gilles Frydman | Nov 20, 2008
What’s wrong with this picture? While continuing to search for information regarding the collective statistical illiteracy issue covered a couple of days ago, I found a brand new article in the New England Journal of Medicine. As an exercise I decided to...
by e-Patient Dave | Nov 17, 2008
Cross-posted from my own blog, with a late p.s. from this morning’s paper When John Grohol read my post the other day about evidence-based medicine, he steered me to a paper worth reading: Helping Doctors and Patients Make Sense of Health Statistics. (Update Dec...
by John M. Grohol, Psy.D. | Nov 13, 2008
Public health is different than our personal health. Most people take for granted the role public health agencies play in our lives, but its primary emphasis is tracking disease data across the country in order to prevent a nationwide epidemic or pandemic. Nobody...
by Gilles Frydman | Nov 3, 2008
Everybody can say this simple French word. Ludique Definition: (adj) related to games, playful, recreational Could it be what’s missing from many of the health & wellness Health 2.0 applications I have seen so far? Why would that be important? Last I wrote...
by Susannah Fox | Nov 3, 2008
I should have posted this when I posted my slides, but better late than never. Remarks by Susannah Fox of the Pew Research Center’s Internet & American Life Project at the Connected Health symposium in Boston, MA, on October 27, 2008. The Pew Internet...
by Gilles Frydman | Oct 30, 2008
Too many years witnessing the same thing. First in the ACOR system. Then in many conferences about eHealth, e-Patients and now Health 2.0 and the Connected Health symposium at Harvard Medical School. Why is an entire segment of the US population almost completely...
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