by e-Patient Dave | Jul 3, 2008
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others:This week, as we reflect on American heroes, we’re saluting a few “patient...
by Jon Lebkowsky | Jun 26, 2008
Note added afterward by e-Patient Dave:Everyone, please read this post well and understand it well. I think this is a signal moment in our history. As much as I’ve believed in the principles developed by Doc Tom and his e-Patient Scholars Working Group, this...
by Susannah Fox | Jun 23, 2008
I always suspect that audience members have as much to share as I have to say. So when Mary Madden and I received an invitation to speak at the National Institutes of Health we created a participatory talk about participatory medicine: 35 minutes of our findings; 45...
by Gilles Frydman | Jun 16, 2008
When Google Health was launched, a few weeks ago, all the onus was put on the privacy issue. So much so that we may have lost focus on other issues that are of real importance to the future of e-Patients (that means you and me and everybody else you know!). For...
by Jon Lebkowsky | May 21, 2008
Bringing healthcare solutions R&D into the 21st century: “the drug discovery process is broken,” how do we fix it? Science Commons suggests the creation of a Health Commons. The problem statement is clear: We are no longer asking whether a gene or a...
by e-Patient Dave | May 11, 2008
Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...
by John M. Grohol, Psy.D. | Apr 17, 2008
CNN has recently published an article about what to look for in a doctor rating website. Unfortunately, they repeat some misconceptions and errors about these services. The most serious error is the claim that the greater volume a website has of doctor ratings, the...
by John M. Grohol, Psy.D. | Apr 16, 2008
Popular Mechanics, of all places, has an exclusive, rare interview with Udi Manber, the head of search quality at Google. You’d hope that if anybody understands how the Web and search should work, it would be this guy. Sadly, you would be wrong. In an ideal...
by John M. Grohol, Psy.D. | Apr 15, 2008
Dr. Robert Wachter has an interesting essay over at THCB entitled, Should Patient Satisfaction Scores Be Adjusted for Where Patients Shop? As health care in the U.S. continues to move in the direction of tailoring itself to patient satisfaction, the question becomes...
by Jon Lebkowsky | Mar 27, 2008
23andMe is a new personal genomics system that will have social features. Once your DNA is analyzed, you’ll be able to compare it with others’. People will be able to find each others by allele (genetic variation). Unfortunately, you have to shell out $999...
by e-Patient Dave | Mar 15, 2008
There’s been a lot of talk about Scott Haig’s November article in Time, When the Patient is a Googler: Alan Greene wrote on this blog; it was a hot topic on the NY Times “Well” blog; and Susannah Fox said: I’d love to hear what people...
by Gilles Frydman | Mar 14, 2008
I am sick & tired of the advice given to people looking for medical information on the internet. All the content evaluation guidelines say the same. Look for sponsorship, currency, factual information and audience. A recent CNN Empowered Patient entry states...
by Susannah Fox | Mar 6, 2008
The Health 2.0 conference was an opportunity to learn about an amazing array of emerging technologies and, for me, to connect them to a bigger vision of what’s happened and what’s next. Here is the text of my remarks, annotated with as many links as I can...
by Cheryl Greene | Mar 4, 2008
The Health 2.0 Conference in San Diego, CA (March 4, 2008) was a buzz with ideas of innovation and connectivity. Matthew Holt and Indu Subalya, MD managed to cram more presentations into one day than most conferences do in two days. The almost-overwhelming day was...
by Gilles Frydman | Jan 31, 2008
Everybody is talking about social networks, collective intelligence, wisdom of crowds, smartmobs, User Generated Content and other “2.0” terms. It almost sounds like the only recipe to create the next big idea in the medical internet is to use a few of...
by Cheryl Greene | Jan 25, 2008
“Women More Likely to Turn to Internet than Friends or Family for Health Information” according to a January 22 comScore press release. Reading further you find out “The study was designed to help explain how women choose their birth control method … and...
by Cheryl Greene | Jan 19, 2008
Join the e-Patient Scholars for a conversation on The WELL. Here’s a great quote: “When the Internet industry is booming and investors are interested, we start focusing too much on the technology, because there are so many new technologies hoping to attract users and...
by Alan Greene | Jan 15, 2008
In November 2007, Scott Haig, MD, an orthopedic surgeon and medical columnist for TIME, wrote an article for the magazine called “When the Patient is a Googler”. He described a patient of his he called Susan, whom he felt was emblematic of patients who research...
by Susannah Fox | Jan 14, 2008
Press coverage of the Pew Internet Project’s recent report, “Information Searches That Solve Problems,” focused on how “libraries still matter” especially among young people. One aspect that I think merits further attention is how people...
by Cheryl Greene | Jan 6, 2008
For years Doc Tom urged us to facilitate patients’ publicly rating doctors as a way to accelerate e-pateints movement. Alan (DrGreene) was excited about this, even though he was a physician, but I was afraid it would open Pandora’s box. In the winter of...
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