by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Jun 27, 2010
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.)Â Not only are statistics often misinterpreted; even when they’re correctly understood,...
by e-Patient Dave | Jun 11, 2010
I’ve only been studying healthcare for two years – far less than most people on this blog – and I hesitate to be overly assertive. But I have, finally, reached the point where I feel confident in citing cases where people are simply being...
by Susannah Fox | Mar 24, 2010
For the past 5 months I have been immersed in data and narrative about chronic disease. The result, “Chronic Disease and the Internet,” is a report sponsored by the Pew Internet Project and the California HealthCare Foundation. We find that living with a...
by e-Patient Dave | Nov 23, 2009
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you’ve got learning...
by Jon Lebkowsky | Oct 21, 2009
Press release for the October 22nd launch of the Journal of Participatory Medicine: Improving health care: Journal of Participatory Medicine will document methods that work for patient/provider collaboration Launch at Connected Health Symposium features essays by...
by e-Patient Dave | Oct 15, 2009
Marcia Angell MD is a well-known, respected physician, long-time editor of NEJM. So it was a bit of a shock today when Amy Romano, blogger for Lamaze International, sent me this quote: It is simply no longer possible to believe much of the clinical research that is...
by e-Patient Dave | Aug 14, 2009
Important update: it turns out the writer did get it right, and this was an editing error at the Boston Globe. See my comment August 17. —– As empowered, engaged patients we have a responsibility to evaluate the articles we read. A case in point is this...
by e-Patient Dave | Jul 10, 2009
I am sick of hearing politicians and money-making parties talk about savings projections “over ten years.” It’s STUPID. We’re stupid if we listen. Nothing (and I mean nothing) happens as projected ten years ago, not even five. It’s...
by e-Patient Dave | Feb 27, 2009
Update January 2011: Be sure to read the comments, which have links to many valuable resources. This item today, from MedPage, underscores the importance of having our eyes open about the human frailties in the research process that our lives can depend on. ORLANDO,...
by e-Patient Dave | Jan 22, 2009
E-Patient Dave spotted an informative post on the Science Blog about an inherent shortcoming of the publication process: failed trials don’t get published, so others don’t have the chance to learn from them. His post about it here. (Where did he learn...
by Christine Gray | Dec 23, 2008
Pass the Valium! Previously on e-Patients.net I recounted the crazy-making quest for a second opinion on an abnormal mammogram (microcalicifications) as per the advice of New York Times health columnist Jane E. Brody, a breast cancer survivor. Â The gynecologist who...
by Susannah Fox | Dec 2, 2008
Just before Thanksgiving, Microsoft released a study entitled, “Cyberchondria: Studies of the Escalation of Medical Concerns in Web Search.” Ryen White and Eric Horvitz took advantage of a data set that few people have access to (log files from...
by Gilles Frydman | Nov 20, 2008
What’s wrong with this picture? While continuing to search for information regarding the collective statistical illiteracy issue covered a couple of days ago, I found a brand new article in the New England Journal of Medicine. As an exercise I decided to...
by Gilles Frydman | Nov 18, 2008
Everyone knows the supposed origin of the phrase. But as you can see here it goes back to Medicine: “Look at the dozens of operations by me this year without a death,” says the operator. His less enthusiastic neighbor thinks of the proverbial kinds of...
by e-Patient Dave | Nov 17, 2008
Cross-posted from my own blog, with a late p.s. from this morning’s paper When John Grohol read my post the other day about evidence-based medicine, he steered me to a paper worth reading: Helping Doctors and Patients Make Sense of Health Statistics. (Update Dec...
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