by e-Patient Dave | Aug 4, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jul 31, 2013
I’ve just attended John Moore MD’s “defense,” as they call it – his presentation of the results from his PhD thesis project at the M.I.T. Media Lab. The project has participatory medicine written all over it: it’s about Developing...
by e-Patient Dave | Jul 24, 2013
I’m thrilled to say that Dr. Ivan Oransky is now VP and editorial director of MedPage Today. From the announcement in Crain’s New York: “Dr. Oransky, previously on the editorial staff at Scientific American and The Scientist and most recently...
by e-Patient Dave | Jul 15, 2013
Just a quick note on something I’m happy to say we’ve been hollering here for years: A lot of what passes for “evidence” from peer reviewed medical journals is scientifically weak, and has never been verified by an independent lab. That means...
by Nancy Finn | Jun 13, 2013
A recent report by CMS detailed statistics on how many health providers had actually received Meaningful Use (MU) incentive payments. As of March, 2013, 160,890 eligible professionals had received Medicare incentive payments and 83,765 professionals had received...
by David Harlow | Jun 5, 2013
ONC is sponsoring the Blue Button Plus Challenge — putting up some prize money to incentivize teams of developers to come up with solutions to the problem of getting patient data to patients. The first phase of the challenge is crowdsourcing ideas from patients...
by e-Patient Dave | Jun 2, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | May 30, 2013
See my post about this on Forbes. This is as close as a call to arms as we ever get around here, given how collaborative we are. But this is a case of bad science and/or bad reporting, with clear harm to the participatory medicine movement. Whatever the reason, it...
by David Harlow | May 20, 2013
Going public recently with her story of a prophylactic double mastectomy after testing positive for BRCA1 (a gene linked to breast cancer) via an op-ed piece in the New York Times, Angelina Jolie is clearly trying to get the message out that radical choices must...
by Nancy Finn | May 14, 2013
From the lens of a patient who recently experienced major surgery, I now realize how difficult it is to be participatory when you are in pain and taking large doses of pain medication which dulls the senses and puts you in a place where you are not really thinking...
by Susannah Fox | May 12, 2013
We have posted many stories featuring mothers over the years. In celebration of Mother’s Day, a compilation: A Lifetime of Participatory Medicine Can Start With Maternity Care Through the Land of Smoke and Mirrors: An e-Patient’s Odyssey (“Mama Lion”...
by David Harlow | May 12, 2013
The FDA launched an impressive patient network website this month, after nearly four years of research, focus groups, usability testing and more. The twin goals for this website are promoting the educational mission of the FDA, and promoting opportunities for patient...
by David Harlow | May 8, 2013
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
by e-Patient Dave | May 6, 2013
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by David Harlow | Apr 24, 2013
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine’s Public Policy Committee completed a...
by Danny van Leeuwen | Apr 11, 2013
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
by Kathleen O'Malley | Apr 5, 2013
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the...
by e-Patient Dave | Mar 4, 2013
Update March 24: I’m retitling this post, and putting it on hold, pending resolution of important concerns raised by other members of our Society for Participatory Medicine. In particular, see Adrian Gropper’s posts on The Health Care  Blog. This is almost...
by e-Patient Dave | Feb 24, 2013
This is a long post, but it strikes deep to the core of the transformation underway in medicine, even in the science that drives medicine. It appears the world is starting to change, in a very good way. We’ve often written about the changing culture of medicine,...
by e-Patient Dave | Feb 18, 2013
This is the big update to our preview post last November. There’s a stage in a movement where it starts to get serious media coverage, and ours is coming of age. We’ve documented the progress: 2009: Susannah Fox was on NPR’s Morning...
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