e-Patients Blog
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PCORI Workshop post 3: Danny van Leeuwen (@HealthHats)
Next in our series of posts by SPM members on their experience at last weekend's PCORI workshop. See Monday's introductory post. I recently met (face to face) Danny van Leeuwen, one of the newer members of our society. He's a sensitive, caring patient and RN, and one...
PCORI Workshop post 2: Kathy Day RN (McCleary MRSA Prevention)
Second in a series announced yesterday of posts by SPM members who attended last weekend's PCORI workshop. This one's from Kathy Day, an avid e-patient advocate from Maine. This originally appeared here on her blog, on Monday. Why PCORI made me endure flying through...
PCORI Workshop post 1: Kelly Young (@RAWarrior)
As noted in today's earlier post, we're starting a series of posts by SPM members who participated in last weekend's PCORI workshop. Kelly Young (@RAWarrior) is one of the smartest e-patients I've ever seen anywhere. Aside from her technical expertise (a superbly...
Beginning a series: SPM members’ thoughts on the PCORI workshop
All: I'd like to collect a list of all blog posts about this PCORI weekend, from SPM members (our Society) and anyone else. Please write to blog@participatorymedicine.org, and disregard the auto-reply that you'll get. __________________Â This post started as a prolog...
Nancy Finn: Collaborative Teams that Include Patients Make Care Coordination Possible
Today's guest blogger, author and SPM Secretary Nancy Finn, originally posted this essay on her personal blog. Care coordination requires that the right information reaches the right people within an optimal time frame, so that a patient's full information is always...
No-brainer alert: sign this now! O’Reilly letter on “give us our lab data”!
Quick, quick, do this now! Â Go add your signature to the hundreds who have already signed - this is about getting us access to our lab results, the same as any other health data! How important is this? Â Here's a video of SPM member Ann Waldo discussing it with awesome...
Be informed. Hospital quality varies widely by state, within states, even within hospitals
USA Today has a piece today on HealthGrades, one of the sites that provide information on medical outcomes and safety. The data show that quality varies widely. Experienced e-patients know this, and will learn what they can about their local treatment options....
What makes a doctor-patient partnership flourish?
TEDMED last April was a big time for our Society. Many members were there, especially our artist-in-residence Regina Holliday and videographer Ross Martin, who collected the footage for his now-famous Gimme My DaM Data video. And, as we reported here, The Role of the...
First Electronic Health Record exchange in MA @stales
Member Alicia Staley on the HIT Community (MA HI Community)Â blog with a great recount of the first EHR exchange in Massachusetts - it happened last week: https://www.thehitcommunity.org/2012/10/16596/
#s4pm Tweetchat tonight Oct 17 at 8 PM ET / 5 PM PT about… hashtags
Hash-Day on Tweet Chat at #s4pm on Weds, 10/17 In honor of Social Media Week (at Mayo in MN; #mayoragan) and with a nod to @hjluks (of the @Symplur hashtag project) our #s4pm chat theme this week will be about #hcsm and the topic is: "How Do You Like To...
New series on overdiagnosis
We've long written here about Health News Review, the terrifically empowering and educational news-dissection service started by Gary Schwitzer and now involving numerous writers. Health News Review was modeled after a similar service in Australia started by Ray...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
