by Susannah Fox | Feb 17, 2010
Gretchen Berland is one of my heroes, so I was thrilled when she asked me to give a guest lecture at Yale. Then I read the syllabus for “Media & Medicine in Modern America.” It’s too cool to keep to myself… The organizing themes for the...
by e-Patient Dave | Feb 1, 2010
Re Time’s article “Group Therapy” in the February 8, 2010 issue, arriving on newsstands now: Time’s freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October. In hours of...
by Susannah Fox | Jan 31, 2010
…The remaining 95% of “patients” out there are not motivated to become informed, or invest the time/energy/money in using any of these tools. These are the folks that know that fast food isn’t healthy, but are just too tired to choose differently. Some (emphasis on...
by Susannah Fox | Dec 10, 2009
Listen in at 9pm Eastern on Monday, 12/14, to The Stupid Cancer Show. Host Matthew Zachary will interview Edward Shin, MD, founder of Healogica, Inc., Jane Sarasohn-Kahn, a health economist and blogger, and… me!
by Susannah Fox | Nov 20, 2009
A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your...
by Susannah Fox | Oct 14, 2009
Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...
by e-Patient Dave | Oct 4, 2009
If you haven’t already, please watch this, which is the best concise introduction to e-patients and participatory medicine I’ve seen: Susannah Fox mentioned this video six weeks ago, in a quickie post in our “found on the net” sidebar. But that...
by Susannah Fox | Sep 17, 2009
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help....
by Susannah Fox | Aug 18, 2009
Federal agencies can, and should, be the first responders to health questions. Social media can help. That’s my summary of presentations from last week’s National Conference on Health Communication, Marketing and Media conference, where I had the sense,...
by Susannah Fox | Jul 8, 2009
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel...
by Sarah Greene | Jun 26, 2009
“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and...
by Gilles Frydman | May 19, 2009
Another post about healthcare “creepware” from Opaque, Inc. While reading the Wall Street Journal health blog, I saw this disturbing piece of information: In a new survey conducted by Mercer, the employee benefits consulting shop, nearly half of the 428...
by Gilles Frydman | May 6, 2009
Clinicians, the Government, and many other groups are working hard to improve health care quality, but it’s a team effort. You can improve your care and the care of your loved ones by taking an active role in your health care. Ask questions. Understand your...
by Susannah Fox | May 5, 2009
Update on 12/3/14: Nature re-ignited the access debate when they announced that they will make all their articles “free to view” (but if you read the fine print: it makes the “dark social” practice of #icanhazpdf and other access work-arounds...
by Susannah Fox | Apr 23, 2009
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes...
by Susannah Fox | Feb 13, 2009
Here is a key line from the Pew Internet Project’s report on Twitter and status updating: Twitter users engage with news and own technology at the same rates as other internet users, but the ways in which they use the technology—to communicate, gather and share...
by Susannah Fox | Jan 8, 2009
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement...
by e-Patient Dave | Dec 5, 2008
This guest post is an article written by Lisa Neal Gualtieri, published in her local paper. It’s an example of widening distribution of principles and practices documented in the e-patient white paper. I’m grateful to Lisa for sharing these true stories of...
by Gilles Frydman | Nov 3, 2008
Everybody can say this simple French word. Ludique Definition: (adj) related to games, playful, recreational Could it be what’s missing from many of the health & wellness Health 2.0 applications I have seen so far? Why would that be important? Last I wrote...
by Susannah Fox | Nov 3, 2008
I should have posted this when I posted my slides, but better late than never. Remarks by Susannah Fox of the Pew Research Center’s Internet & American Life Project at the Connected Health symposium in Boston, MA, on October 27, 2008. The Pew Internet...
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