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Crowdsourcing the Definition of Participatory Medicine

“Crowdsourcing: the act of taking a job traditionally performed by a designated agent and outsourcing it to an undefined, generally large group of people in the form of an open call.” Jeff Howe Or in other words Participatory Outsourcing. There is clearly...

About Us

This blog is a project of the Society for Participatory Medicine. To contact us: Blog team: blog at participatorymedicine.org Society for Participatory Medicine:  info at participatorymedicine.org Journal of Participatory Medicine (JoPM.org):...

CCHIT, PHR and the Lack of e-Patient Representation

When Google Health was launched, a few weeks ago, all the onus was put on the privacy issue. So much so that we may have lost focus on other issues that are of real importance to the future of e-Patients (that means you and me and everybody else you know!). For...

Why Doesn’t My Doctor Answer My Email?

Because he or she is afraid — afraid of being overwhelmed by one more responsibility, of not being reimbursed for time spent answering emails, of patient privacy, of HIPAA, and of course, of legal liability if they set an expectation of replying to emails in a...

When the Patient is a Yahoo

There’s been a lot of talk about Scott Haig’s November article in Time, When the Patient is a Googler: Alan Greene wrote on this blog; it was a hot topic on the NY Times “Well” blog; and Susannah Fox said: I’d love to hear what people...
Flashback to 2001

Flashback to 2001

Bowing to popular demand (OK, one person) I uploaded a PDF of the 2001 press release from the American Medical Association which suggested that Americans make a New Year’s resolution to “trust your physician, not a chat room” since the information found online puts...

e-Patients Lead The Way at Health 2.0 Conference

The Health 2.0 Conference in San Diego, CA (March 4, 2008) was a buzz with ideas of innovation and connectivity. Matthew Holt and Indu Subalya, MD managed to cram more presentations into one day than most conferences do in two days. The almost-overwhelming day was...

What Works Best for Patients on the Web?

Joe Shapiro’s piece on patients turning to the internet was well done and interesting. Our thanks to Susannah Fox for her contribution to this article, and for her work on the survey about patients with chronic condititions who use the internet. I particularly...

Daily Kaizen

I just rediscovered Daily Kaizen, a health care provider blog that maintains an e-patients perspective. I think Ted Eytan, one of the blog’s authors, lives in the future, so I’m always curious to see what he’s up to. – Susannah Fox...

Personal Health Records

Since keeping track of your own health records is part of the e-patient responsibilities described by Charlie Smith in today’s post, I thought I’d point out a study sent to me by Lorenzo Moreno, an analyst at Mathematica Policy Research. His team conducted...

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