by e-Patient Dave | May 10, 2009
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me...
by e-Patient Dave | May 10, 2009
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and...
by e-Patient Dave | Apr 30, 2009
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical...
by Gilles Frydman | Apr 30, 2009
An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step...
by Gilles Frydman | Apr 29, 2009
I have been following with real interest the notes and discussions about the Health 2.0/Ix conference that took place in Boston last week. I am not willing to get involved in this discussion because in some ways I think it missed the most important aspect of the...
by e-Patient Dave | Apr 26, 2009
One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of...
by Susannah Fox | Apr 23, 2009
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes...
by e-Patient Dave | Apr 19, 2009
This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here. As I said in the the previous post, “Let me make clear, I personally have only one agenda: to empower, equip...
by e-Patient Dave | Apr 18, 2009
Today’s Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I’m the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex...
by e-Patient Dave | Apr 17, 2009
A few items before I head off to the day job: As my hospital’s CIO John Halamka posted Monday, we had a concall Wednesday night. He, Roni Zeiger of Google, my physician Danny Sands and I spoke for an hour about this entire broad topic....
by e-Patient Dave | Mar 19, 2009
Update 3/21: For easier reference, I’m editing this to incorporate some goodies from comments below. Here’s a little game that just might turn into something transformational. Since I started learning about this world of participatory medicine, I’ve...
by Gilles Frydman | Mar 12, 2009
Cross-posted from my own blog. Truth be told, at present, the activities of “La Cosa Nostra” are more transparent that what goes on in the health care system. The only certainty I have, as an individual trying to figure out what is not wrong with the...
by Gilles Frydman | Mar 10, 2009
Cross-posted from my own blog. During 2 weeks in December 2008, over 9,000 Americans in all 50 states and the District of Columbia registered to host a health care community group to discuss healthcare reform. Thousands more participated in these gatherings. They all...
by e-Patient Dave | Mar 8, 2009
I have a fairly geeky abstract question about one aspect of the e-patient world. It’s not pivotal for issues of empowerment, access to care, etc, but as my friends and I keep learning about participatory medicine, the topic of social networking keeps coming up....
by Gilles Frydman | Mar 6, 2009
Cross-posted from my own blog. Laura Landro, in Wednesday’s WSJ, wrote a great article, “Finding a Way to Ask Doctors Tough Questions” about the fact that it remains difficult to challenge health professionals about any aspect of the work they do....
by e-Patient Dave | Feb 22, 2009
Unless you’ve been offline since Wednesday, you know that Medpedia has gone into public beta. I have a concern about the reliability of their model, based on my personal experience and the self-education I’ve been doing for the past year. I want to lay out...
by e-Patient Dave | Feb 21, 2009
At the 25th annual TEPR+ conference in Palm Springs on Feb. 2, Alan Greene (DrGreene.com) gave the opening address. It was inspiring – I wish we had a video of it. Too bad so many attendees opted to skip the keynotes and fly into town late! Like, did you guys think...
by e-Patient Dave | Jan 27, 2009
One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I’d experienced excellent care in almost all ways, it showed that I as a patient have far more to...
by Susannah Fox | Jan 8, 2009
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement...
by Christine Gray | Dec 23, 2008
Pass the Valium! Previously on e-Patients.net I recounted the crazy-making quest for a second opinion on an abnormal mammogram (microcalicifications) as per the advice of New York Times health columnist Jane E. Brody, a breast cancer survivor. Â The gynecologist who...
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