by Gilles Frydman | Nov 3, 2008
Everybody can say this simple French word. Ludique Definition: (adj) related to games, playful, recreational Could it be what’s missing from many of the health & wellness Health 2.0 applications I have seen so far? Why would that be important? Last I wrote...
by Gilles Frydman | Oct 30, 2008
Too many years witnessing the same thing. First in the ACOR system. Then in many conferences about eHealth, e-Patients and now Health 2.0 and the Connected Health symposium at Harvard Medical School. Why is an entire segment of the US population almost completely...
by e-Patient Dave | Oct 28, 2008
Where have we heard this story before? A friend of mine slipped on the sidewalk recently and broke her hip. She had surgery in one of the best hospitals in the country. But it [wasn’t their staff, it] was her grown daughter who noticed that she was having an...
by Alan Greene | Oct 26, 2008
Thomas Jefferson had a radical notion: When the people are well-informed, they can be trusted to govern themselves. This powerful idea worked to end our rule by the King, but at the time it didn’t apply to slaves; it didn’t apply to women. It STILL...
by Susannah Fox | Oct 24, 2008
An East Coast contingent of the e-patients group will be in Boston on Monday and Tuesday, speaking and listening at the Connected Health symposium. I’m going to present the Pew Internet Project’s latest data on social media and how the participatory Web is...
by Gilles Frydman | Oct 22, 2008
JAMA has an interesting Patient Page on quality of care. The definitions of e-Patients and Participatory Medicine mention or point to quality of care. Are we talking about the same thing? NOT AT ALL! If the patient page of JAMA represents the official position of the...
by Susannah Fox | Oct 21, 2008
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of...
by e-Patient Dave | Oct 16, 2008
As an empowered patient I’m willing to go to the ends of the earth to help the medical community get beyond the famed “culture of blame,” so everyone involved can learn from errors. Boston’s Beth Israel Deaconess Medical Center had a wrong site...
by Gilles Frydman | Oct 13, 2008
“I noticed that my spellchecker doesn’t recognize ‘subprime’. […] I am guessing that will be remedied soon. “in the Beginning” Stephen J. Dubner; 09/30/2008 This is so true! Just like e-patient and participatory medicine! None of these...
by John M. Grohol, Psy.D. | Oct 11, 2008
This blog is a project of the Society for Participatory Medicine. To contact us: Blog team: blog at participatorymedicine.org Society for Participatory Medicine: info at participatorymedicine.org Journal of Participatory Medicine (JoPM.org):...
by e-Patient Dave | Oct 11, 2008
Ted Eytan has a post by this name. It’s a question asked of him by Ann Barber, MD. I couldn’t be happier! His post and the comments have gotten lively. I posted about Chapter 2 of e-Patients: how they can help us heal health care, which includes the seven...
by Alan Greene | Oct 9, 2008
I just heard from Gary Kreps, Professor of Health Communication at George Mason University and e-patient pioneer, reporting about drastic cutbacks to the Cancer Information Service programs. Excellent up-to-date information is an important foundation for Participatory...
by Susannah Fox | Sep 18, 2008
e-Patient Dave joined this group in March 2008 thanks to an introduction by Danny Sands, MD, his primary care physician. Dave quickly established himself as the number one fan of the “white paper,” which we had edited and published after Tom...
by Susannah Fox | Sep 3, 2008
Jeff Howe’s blog post, “Can We Crowdsource Medical Expertise?” elicited the following comment from Daniel Reda of CureTogether.com: “Personally, just like I have batting averages, crash test ratings and historical earnings, I’d like to...
by Susannah Fox | Aug 26, 2008
Ha Tu and Genna Cohen of the Center for Studying Health System Change released their latest report on how Americans gather health information (HTML report; news release). I met with them in June and learned a bit more about how they approached this massive data set...
by Susannah Fox | Aug 1, 2008
The Pew Internet Project released the latest estimate for the e-patient population: 75% of internet users. Details on this and an upcoming survey follow… My colleagues recently updated our top three trend charts: Who’s Online, Internet Activities, and...
by Jon Lebkowsky | Jul 31, 2008
Mary Matthiesen, founder of Conversations for Life, has 17 years of front-line experience in healthcare, end of life care, and executive leadership. She’s a transpersonal educator, coach, and community facilitator, raising awareness and promoting social change...
by Susannah Fox | Jul 4, 2008
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information instead of being satisfied with the “consumer...
by Dan Hoch | Jun 26, 2008
In order to take command of your health, you must have access to information. Fortunately, the availability of information has been greatly enhanced by the advent of the Internet. In fact, many people attribute the existence of the modern e-patient to the Internet....
by Gilles Frydman | Jun 25, 2008
Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a new framework to increase health end-users...
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