by Jon Lebkowsky | Jul 31, 2008
Mary Matthiesen, founder of Conversations for Life, has 17 years of front-line experience in healthcare, end of life care, and executive leadership. She’s a transpersonal educator, coach, and community facilitator, raising awareness and promoting social change...
by Susannah Fox | Jul 4, 2008
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information instead of being satisfied with the “consumer...
by Dan Hoch | Jun 26, 2008
In order to take command of your health, you must have access to information. Fortunately, the availability of information has been greatly enhanced by the advent of the Internet. In fact, many people attribute the existence of the modern e-patient to the Internet....
by Gilles Frydman | Jun 25, 2008
Today, June 25, 2008 the Markle Foundation’s Connecting for Health Initiative, a public-private collaborative group engaging more than 100 organizations representing all major components of the health sector, released a new framework to increase health end-users...
by Susannah Fox | Jun 18, 2008
Alan Greene emailed this dispatch from Italy: While attending the 16th IFOAM Organic World Congress, Cheryl and I met a delightful man from the Netherlands named Martien Lankester, executive director of Avalon. He is a physician, teacher, and organic farmer. He...
by Gilles Frydman | Jun 16, 2008
When Google Health was launched, a few weeks ago, all the onus was put on the privacy issue. So much so that we may have lost focus on other issues that are of real importance to the future of e-Patients (that means you and me and everybody else you know!). For...
by e-Patient Dave | Jun 7, 2008
This weekend the Associated Press is publishing a story about CaringBridge and a similar site, CarePages. It relates the experience of several users, including my community and family during my cancer adventure last year (see my CaringBridge journal.). Newcomers: if...
by Dan Hoch | Jun 5, 2008
Orly Avitzur, a neurologist and e-Patient savvy doc, is now a medical editor at the Consumer’s Union/Consumer Reports. She’s written an excellent short review of some of the important developments in what we’ve come to call participatory medicine...
by e-Patient Dave | Jun 2, 2008
Cross-posted (with additions) from my own blog 5/25/08 As I talk to people about “participatory medicine” and patient empowerment, I’ve needed to think out what that term really means when the rubber meets the road – when you (the patient) get...
by e-Patient Dave | May 6, 2008
e-Patients, alert! Time to participate in creating the lexicon. Ted Eytan MD is open to suggestions on his definition of Health 2.0 – he’ll be giving a talk soon and wouldn’t mind some honing, particularly shortening. Here’s the current...
by Susannah Fox | Apr 14, 2008
The Deloitte Center for Health Solutions released a very interesting report on “Health Care Consumerism” which looks at five “zones” of activity: traditional health services, self-directed care, alternative and non-conventional health services,...
by e-Patient Dave | Apr 8, 2008
As I talk to people about participatory medicine and the e-patient principles, often the first belief to transform is that it’s inherently risky to “do your own googling” and inherently safer to just trust “the system” (or “your...
by e-Patient Dave | Apr 3, 2008
I’m going to express something very personal here, because the community behind this blog is going through a profound transition, and it’s time for an acknowledgement. Many of you who currently read this blog already know this but there will be a new wave...
by Gilles Frydman | Mar 28, 2008
It took me a few days to digest what was troubling me with the New York Times Magazine article. The efficacy of the ACOR groups is based in part on the dual fact that patients and caregivers members of the online communities NEVER behave like they are replacing their...
by e-Patient Dave | Mar 15, 2008
There’s been a lot of talk about Scott Haig’s November article in Time, When the Patient is a Googler: Alan Greene wrote on this blog; it was a hot topic on the NY Times “Well” blog; and Susannah Fox said: I’d love to hear what people...
by Gilles Frydman | Mar 14, 2008
I am sick & tired of the advice given to people looking for medical information on the internet. All the content evaluation guidelines say the same. Look for sponsorship, currency, factual information and audience. A recent CNN Empowered Patient entry states...
by Susannah Fox | Mar 6, 2008
The Health 2.0 conference was an opportunity to learn about an amazing array of emerging technologies and, for me, to connect them to a bigger vision of what’s happened and what’s next. Here is the text of my remarks, annotated with as many links as I can...
by Eric Bersh | Sep 13, 2025
My primary care physician motivated me to share my story, which is perhaps best described as an unfinished journey. What started to be a typical runner’s problem morphed into dealing with limited personal mobility with neuropathic pain and loss of sensation. I was...
by e-Patient Dave | Jun 27, 2025
Our Society was founded by 11 friends and followers of “Doc Tom” Ferguson, who died in 2006 of multiple myeloma. (If you don’t know his extraordinary vision, see our Doc Tom page, and perhaps our Founders page. I continue to cite him in my speeches,...
by Eric Bersh | Feb 5, 2025
Mortality is a fabric more important than money, politics, and belief systems. We all share the same responsibility of health; the only variable is the time in our life we acknowledge it. Rare/undiagnosed consumer behavior is the most intense example of participatory...
Collaboration is the Best Medicine: How to Partner with Your Doctor for Better CareOctober 6, 2025
Collaboration is the Best Medicine: Bridging the Gap in Patient ParticipationSeptember 23, 2025
Dealing with Medical Uncertainty, Ambiguity, and FrustrationSeptember 13, 2025
Collaboration is the Best Medicine: The Time for Participatory Medicine is NowSeptember 10, 2025
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
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