by e-Patient Dave | Nov 16, 2009
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying...
by e-Patient Dave | Nov 15, 2009
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that...
by e-Patient Dave | Nov 11, 2009
Here’s another true e-patient story from one of our team. Cheryl Greene is third from the left in the banner at top of this blog. She’s a long-time friend of our founder “Doc Tom” Ferguson, a board member of the Society for Participatory...
by Gilles Frydman | Oct 13, 2009
Note: if you do not use Twitter an explanation of this post’s title may be in order. #WhyPM is the Twitter hashtag we have been using collectively to announce the launch of the Journal of Participatory Medicine and to mention topics of interest from the Journal and...
by e-Patient Dave | Oct 4, 2009
If you haven’t already, please watch this, which is the best concise introduction to e-patients and participatory medicine I’ve seen: Susannah Fox mentioned this video six weeks ago, in a quickie post in our “found on the net” sidebar. But that...
by e-Patient Dave | Oct 3, 2009
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month....
by Susannah Fox | Oct 2, 2009
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one....
by e-Patient Dave | Sep 29, 2009
In our “Why Participatory Medicine” series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow’s guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and...
by Jon Lebkowsky | Sep 28, 2009
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it’s worth noting. And this time it’s a great sign for participatory medicine, because the news is that hospitals are engaging...
by Susannah Fox | Sep 25, 2009
That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want...
by e-Patient Dave | Sep 21, 2009
Cross-posted from my website, ePatientDave.com – the happy home for my new business! I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional...
by Susannah Fox | Sep 14, 2009
If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand....
by e-Patient Dave | Jul 23, 2009
Guest post by Kent Bottles, M.D., President of ICSI. Preface: The Institute for Clinical Systems Improvement is a Minnesota-based non-profit that “brings together diverse groups to transform the health care system so that it delivers patient-centered and...
by Susannah Fox | Jul 16, 2009
The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press...
by Sarah Greene | Jun 26, 2009
“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and...
by Gilles Frydman | Jun 15, 2009
The wonderful Atul Gawande delivered this past Friday a commencement address, titled “Money,” to the graduates of the University of Chicago Pritzker School of Medicine. He touched on and expanded on the theme of his groundbreaking article “The Cost...
by Gilles Frydman | May 30, 2009
Background information: The Certification Commission for Healthcare Information Technology (CCHIT) is currently in a monopolistic situation since it is, for the last few years, the only entity allowed to certify EHRs. The HITECH act of ARRA mentions specifically the...
by Alan Greene | May 27, 2009
Not Your Father’s Doctor-Patient Relationship – A Positively Revolutionary Approach In pediatrics, research has shown that not all parenting styles produce equal outcomes. Researchers often categorize parenting styles into four groups according to parents’ level of...
by Gilles Frydman | May 19, 2009
Another post about healthcare “creepware” from Opaque, Inc. While reading the Wall Street Journal health blog, I saw this disturbing piece of information: In a new survey conducted by Mercer, the employee benefits consulting shop, nearly half of the 428...
by Gilles Frydman | May 12, 2009
Magical thinking: the ability to draw conclusions that are based on a person’s desire for what reality should be, not necessarily upon what reality actually is. Cargo Cult HIT: Concepts in HIT that follow all the apparent precepts and forms of evidence-based...
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