by Susannah Fox | Feb 28, 2013
A guest post by Wendy White, Founder & President of Siren Interactive Each year Rare Disease Day is celebrated worldwide on the last day of February. This year is even more special because it’s the 30th anniversary of the Orphan Drug Act, which provides incentives...
by David Harlow | Feb 1, 2013
After years of delay, the federales finally finalized the HIPAA Privacy, Security, Breach Notification and Enforcement Rules. Introduction The Final Rule offers significant changes to patient rights and patient protections. (There is much more to the rule, but other...
by Ileana Balcu | Aug 27, 2012
On Wed 8/29/20012 at 8 PM ET / 5 PM PT please join us for a Tweetchat hosted by SPM member Janice McCallum @janicemccallum about Big Data in Healthcare. One good way to participate is to use the website http://tweetchat.com/room/s4pm Go to the site at the right time,...
by e-Patient Dave | Aug 16, 2012
We’re not in it for “the eyeballs,” as they say in the world of website marketing: this isn’t a blog that obsesses about pageviews, unique visitors etc, for purposes of selling ads. (We don’t do ads, we don’t do link exchanges,...
by e-Patient Dave | Jul 25, 2012
On Monday Ileana Balcu posted about a great new article by SPM member Eve Harris, whom we’ve covered before. Eve’s post is a superb depiction of how an empowered patient – someone who knows how to think for themselves and speak up –...
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